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renalpatientview Neil Turner, Edinburgh Cherry Bartlett, Leeds

Renal PatientView. www.renalpatientview.org Neil Turner, Edinburgh Cherry Bartlett, Leeds. Renal PatientView. RIXG. Making computers work for renal patients. Sample Proton screens. NHSnet. Renal server (e.g. Proton). Webserver. The world. Satellite unit. Other hospitals.

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renalpatientview Neil Turner, Edinburgh Cherry Bartlett, Leeds

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  1. Renal PatientView www.renalpatientview.orgNeil Turner, EdinburghCherry Bartlett, Leeds

  2. Renal PatientView RIXG Making computers work for renal patients

  3. Sample Proton screens

  4. NHSnet Renal server (e.g. Proton) Webserver The world Satellite unit Other hospitals

  5. Treatment choices

  6. Renal PatientView Individualised online information for renal patients History Feb 2004 Feasibility studies, proposal May 2004 First funding Jun 2004 Detailed spec, design and planning Nov 2004 Live in Leeds Jan 2005 Live in 4th pilot centre Jun 2005 Broader extension

  7. January 2005 <100 patients

  8. January 2006 850 patients

  9. July 2006 2000 patients

  10. Renal PatientView Remainder of 2006 • Include non-Proton units - first ones nearly there? • Remaining Proton units - it’s been offered • Evaluation • Phase 4? • Report experience to other specialties

  11. Renal PatientView Evaluation Cherry Bartlett Renal Informatics Manager Leeds Teaching Hospitals Trust

  12. Objectives and Method • Objectives • Content, existing and future • Security Issues, real and perceived • Benefits and Risks • Ease of Use • Barriers to Use • Methods • Survey of users and non-users • Ethics approval for questionnaires to be used in six UK centres

  13. Preliminary Findings • Content • 95% of patients believed the website was very or quite valuable (65/30) • Results were the most valued part of the site • Letters were the aspect those who didn’t already have, wanted • Security • Only 7% very concerned prior to use, dropping to 1% after • 82% never changed their password

  14. Preliminary Findings (contd) • Benefits and Risks • “Makes me feel more in control of my medical care”, 77% wholly or partly agree • “Gives me a better understanding of my renal disease”, 82% wholly or partly agree • “I read things that worry me”, 24% wholly or partly agree (40% wholly disagree)

  15. Preliminary Findings (contd) • Barriers to use • 64% of non-users had no knowledge of RPV prior to receiving questionnaire • Gender profile same between users and non-users • 45% of non-users over 66yrs cf 10.5% of users • Lack of computer/internet access regularly quoted • Ease of use • Most users found the website very easy or easy to use and navigate

  16. Comments made by Users • “I felt like a pest keep ringing the hospital for my results after I had attended clinic – I now feel that my results belong to me” • “The website is excellent. It is one of the best innovations I have encountered in the NHS (apart from medical advances) in my 50yrs involvement” • “Patients don’t always take in what the medics say, and to be able to take time to read it properly in the comfort of your own home is wonderful! Keep up the good work” • Winner NHS Leadership in Clinical Informatics Accolade 2006

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