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Services for Younger People with Dementia: A Global Snapshot

Literature Search. Google (.org sites)Databases (eg. Pubmed, ScienceDirect, PsycINFO)Google scholarSpecific words, eg.

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Services for Younger People with Dementia: A Global Snapshot

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    1. Services for Younger People with Dementia: A Global Snapshot Connie MacFarlane & Dr Arlene Astell Dementia Research Group St Andrews

    2. Literature Search Google (.org sites) Databases (eg. Pubmed, ScienceDirect, PsycINFO) Google scholar Specific words, eg.“early onset, services”

    3. Relevant Literature Found Limited, specifically for younger adults 10 full reports 5 main: - Alzheimer’s Australia - Alzheimer’s Association USA - 3 Alzheimer’s Society UK

    4. Issues from the literature All seem to focus on the same issues Importance of early and correct diagnosis Lack of age-appropriate services Support services and available information (family, employment, etc)

    5. Personal and Practical Issues Impact of personal issues as well as practical issues “Information about the diagnosis and its implications in terms of treatment and prognosis must be given in a timely, user-friendly and sensitive way.” (Bentham and La Fontaine, 2005)

    6. Public awareness Social acceptance Employment Positive Outlook

    7. Australia (Alzheimer’s Australia, 2007) Exploring the Needs of Younger People with Dementia in Australia Very few support services for YPWD The Living with Memory Loss Program (LWML) In-home help – Mobile Respite Response Team (MRRT) Sundowner Club Activities

    8. USA (Alzheimer’s Association, 2006) Early Onset Dementia: A National Challenge, A Future Crisis Same issues but more focused on financial issues Important to listen to the people with young onset dementia More attention in UK - specialised community services being created - individual care packages

    9. Type of Services in UK

    10. England Clive Project Templeton Day Centre Lock Cottage Al’s way Project Ready or Not, A survey of services available in the UK for younger people with dementia (Alzheimer’s Society 2006)

    11. Number of Services in Scotland Number of Projects and Teams in Scotland = 12 (all types) Plus 18 that have a nationwide remit TOTAL = 30 (Alzheimer’s Society UK, 2006)

    12. Conclusion UK small incremental steps Developments take time “Geographical lottery” Some good ideas from abroad - same issues More awareness Moving in right direction

    13. Service Developments Recommendations for developments Referral Pathway Holistic Care User input to develop services cmm63@st-andrews.ac.uk aja3@st-andrews.ac.uk

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