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Short History Younger people with dementia and AAJ

Younger People with Dementia in Japan their lives,problems and needs Yoshio MIYAKE MD Teruyo YOSHIMURA RN Yasuo TABEI RCM Naomi ONOUCHI Alzheimer’s Association Japan (AAJ).

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Short History Younger people with dementia and AAJ

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  1. Younger People with Dementia in Japantheir lives,problems and needsYoshio MIYAKE MD Teruyo YOSHIMURA RN Yasuo TABEI RCM Naomi ONOUCHI Alzheimer’s Association Japan (AAJ)

  2. Short HistoryYounger people with dementia and AAJ • AAJ was established in 1980 • 1st and 2nd surveys on younger people with dementia and their families were conducted in 1991 • AAJ demanded that the Ministry of Health and Welfare should improve medical and social services for younger people with dementia and their families in 1992.

  3. Definition People with dementia of the age between 1. 40 and 64 or 2. 18 and 64 or 3. Others

  4. Prevalence 1.Finland Study 260/100,000(age:35-64) (from Sulkava et al.1985,Finland) 2.West London Study 13~166/100,000(age:30-64) (from Harvey et al. 1998,UK) 3.Other studies

  5. The 3rd Survey on Younger People with Dementia and their Families

  6. 1.Method • Questionnaire survey by post mail • Subject: members of AAJ • Period: Oct.20 to Dec.20 in 2001

  7. 2.Results(1) • Number of response:124 • Sex: male 46.8% . female 53.2% • Age of onset: 44 to 63 • Diagnosis: Alzheimer’s disease(79.8%) Pick’s disease(4.0%) Others(16.1%)

  8. 2.Results(2)Main caregiver

  9. 2.Results(3) • Average period between the onset and the first contact with a doctor: 1.4 years • Used services: Day center (49.2%) Home help (30.6%) Short stay (28.2% ) Others

  10. 2.Results(4) • Annual income:0~1 (38.0%) ( million yen) 1~2 (14.9%) 2~3 (28.8%) 3~ (18.3%) • Emotional aspects • Social aspects

  11. 3. Discussion • Care burdens • Emotional influence to children • Decrease of income • Shortage of medical and social services • Social discrimination • Misunderstanding • Others

  12. 4.Conclusions

  13. Charter for younger people with dementia and their cares • Early diagnosis, assessment and referral • Access to specialist services • Adequate financial support • Good employment practice • Education, training and information (from Alzheimer’s Society ,UK)

  14. Younger people with dementia and AAJpresent and future • Support for younger people with dementia • Support for family members family meeting, helpline, counseling • Improvement of medical services easy access to specialist and appropriate treatment • Improvement of social services appropriate care and facilities under the public long term care insurance program • Training of professionals • Public awareness

  15. 20th International Conference of ADI Kyoto 2004 Date : October 15 to 17,2004 Venue : Kyoto, Japan Theme: Dementia Care in an Aging Society www.alzheimer.or.jp

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