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Innovation for the Management of Echinococcosis Besançon 27-29 March 2014

The Italian Registry Of Cystic Echinococcosis : Preliminary results. Francesca Tamarozzi 1 5 , Patrizia Rossi 2 , Fabio Galati 3 , Mara Mariconti 1 5 , Jacopo Nicoletti 1 5 Francesca Rinaldi 1 5 , Adriano Casulli 2 , Edoardo Pozio 2 , Enrico Brunetti 1 4 5

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Innovation for the Management of Echinococcosis Besançon 27-29 March 2014

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  1. The Italian Registry Of Cystic Echinococcosis: Preliminary results Francesca Tamarozzi1 5, Patrizia Rossi2, Fabio Galati3, Mara Mariconti1 5, Jacopo Nicoletti1 5 Francesca Rinaldi1 5, Adriano Casulli2, Edoardo Pozio2, Enrico Brunetti 1 4 5 1Department of Clinical, Surgical, Diagnostic and Paediatric Sciences, University of Pavia, Italy; 2 Department of Infectious, Parasitic and Immunomediated Diseases, IstitutoSuperiorediSanita’, Rome, Italy; 3 SIDBAE, Information Technology, IstitutoSuperiorediSanita’, Rome, Italy; 4 Division of Infectious and Tropical Diseases, San Matteo Hospital Foundation, Pavia, Italy; 4 WHO Collaborating Centre on Clinical Management of Cystic Echinococcosis Innovation for the Management of Echinococcosis Besançon 27-29 March 2014

  2. NEW CE CASES PER YEAR Total CE Foreigners Eastern Europe Africa Western Europe South America Asia Data from Dr F. Cattaneo, MD thesis, 2013

  3. * Italian region with highest prevalence of human cases according to HDR

  4. Chronic • Complex • Neglected

  5. Jan 2012-Feb 2014

  6. Critical issues • Voluntary adhesion of health care centres • Time required to fill/update the records • Patient’s recall and previous records • May be useful an automatic patient • recall to minimize loss to follow-up? • Regular monitoring and evaluation of • the registry itself

  7. European Registry of Cystic Echinococcosis

  8. Acknowledgements • Dr Giovanna MasalaIZS Sardegna, Sassari, Italy • Funding : Progetto di Ricerca Corrente IZS SA 07/10 RC • Dr Adriano CasulliISS, Rome, Italy • Funding European Union • Seventh Framework Programme (FP7/2007-2013) • project HERACLES, grant agreement n°[602051] And Thank you!

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