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Research update 2014. Shubhayan Sanatani, MD, FRCPC, CCDS, FHRS Vice-President, Research. Study proposals. Attempting to run all PACES studies through the PACES Research Committee (PRC) To ensure in alignment with PACES mission To ensure not multiple competing studies Advantages:
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Research update 2014 Shubhayan Sanatani, MD, FRCPC, CCDS, FHRS Vice-President, Research
Study proposals • Attempting to run all PACES studies through the PACES Research Committee (PRC) • To ensure in alignment with PACES mission • To ensure not multiple competing studies • Advantages: • Access broader group • “Second set of eyes” • Less likely to “get scooped”
Process • Send protocol and data collection to VP Research • Can be at any stage • Pre-IRB approval • Early concepts • Post-IRB • Good idea to circulate to somebody first • 2 PRC members review
Some highlights from 2013-14 • First PRC Newsletter! • Several PACES publications
ISPRINT summary • 49 attendees • Saarel – ICD programming registry • Aziz – Dofetilide • Papagiannis – AVNRT in CHD • Escudero/Sanatani – neurodevelopment in SVT • Etheridge – WPW + Arrest/A fib • Seslar/Sanatani/Blaufox – Infant SVT Registry
PRC meeting summary • Standing room only! • CRT registry - Silva • 3830 Lead - Moak • SUD in Duchenne – Kertesz • HCM Risk stratification - Balaji • Fetal LQTS - Cuneo • Gene discovery - Ackerman • Non-fluoro registry - Clark
The Paul C. Gillette Pediatric and Congenital Electrophysiology Society Research Grant 2014 This award is sponsored by the family of Paul C. Gillette to support the spirit of discovery that he dedicated his career to.
Inaugural PCG Winner Molecular Basis of Circadian Variation in Arrhythmias in CPVT
The SADS Foundation’s Courts K. Cleveland, Jr. Young Investigator Award For excellence in the field of Cardiac Channelopathy Research
SADS YIA 2014: Basic • Nicole Boczek • Supervisor: Mike Ackerman • Characterization of SEMA3A-Encoded Semaphorin as a Naturally Occurring Kv4.3 Protein Inhibitor and its contribution to Brugada Syndrome
SADS YIA 2014: Clinical • Jamie Kapplinger • Supervisor: Mike Ackerman • Enhanced Classification of Brugada Syndrome- and Long-QT syndrome-Associated Genetic Variants in the SCN5A-Encoded Nav1.5 Cardiac Sodium Channel
Strategic planning highlights • “it was not as bad as I thought it would be” • Everyone • “Shu, you have been talking all day…I am sick of listening to you…” • Maully Shah
Goals for 2014-15 • Show me the money! • And the focus… • Activate website • Research projects • With links to protocols! • Catalogue past successes on website – Webster • Awards, publications
May 13-16, 2015 Boston PACES RESEARCH MEETING May 12, 2015 8am…