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e-CARE Symposium e-best-practice. Dr. Ri De Ridder Louvain 16/06/2011 General Director INAMI / RIZIV / NIHDI. 3 strategic strands for health and health care data transfer. Basic services e- Healthplatform Socio-administrative exchanges with mutualities Mycarenet
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e-CARESymposium e-best-practice Dr. Ri De Ridder Louvain 16/06/2011 General Director INAMI / RIZIV / NIHDI
3 strategic strands for health and health care data transfer • Basic services e-Healthplatform • Socio-administrative exchanges with mutualitiesMycarenet • Exchange of patient health data e-Care
Origin • Demands from professional associations for registries: rheumatologists for anti TNF; orthopedic surgeons for hip and knee implants. • Need to develop feasible ways for transferring health data linked to reimbursement requests for innovative medical devices. • Assessment of reimbursement conditions by Medical Directors College and communicating approval. • Building up evidence in order to reassess reimbursement conditions.
NIHDI commitment • Administration contract from 2006 on • Growing financial investment 2011: 3.261.000€ budget
Objectives • Respond to requests for professionals led registries. • Avoid multiplication of registering data for different purposes on the same topics (reimbursement, public registries (like MKG/RCM), scientific registries). • Create shared patient data over time for clinical and scientific use. • Make reimbursement procedures faster and easier and over time paperless. • Make feedback on individual, service or peergroup level easier.
Project characteristics (1) • Systematic use of e-Health basic services • Reusable modules developed by SMALS. • System to system (S2S): data transfer from electronic medical record EMDMI to registries (Kmehr) • Webapplication if no EMDMI or S2S with EMDMI not available. • Integrated data validation • Sectoral Health Data committee approval for each project. • Electronic signature & “Force probante”
Project characteristics (2) • Automatic data production • Indicator based activity reports for peer review • Individual patient follow up • Longitudinal scientific follow up
SAFE: Shared Arthritis File for Electronic Use • Anti TNF treatment for Chronic Rheumatic Arthritis. • Both reimbursement, clinical and scientific follow up. • Partners: SRBR/KBVR and FRSR/FWRO. • Inaugurated : 01/10/2010 • 1.633 interventions 84 doctors (34 hospital / 56 private)
ORTHOPRIDE: Orthopedic Prostheses Identification Data • Hip and knee protheses • Clinical (tracing in case of recall or follow up treatment) and scientific follow up of particular techniques • Partners: SORBCOT – BVOT • Started: 01/08/2008 • 5.340 interventions 45 doctors from 20 hospitals
QERMID: quality oriented electronic registration of Medical Implants and devices • Reimbursement, clinical and scientific follow up • Mandatory for reimbursement • ICD • Partner: BeHRA • Started: 01/01/2010 • 3.175 interventions 50 doctors 23 hospitals
QERMID: quality oriented electronic registration of Medical Implants and devices • Pacemakers • Partner: BeHRA • Started: 01/01/2011 • 4.336 interventions 297 doctors 93 hospitals • Endoprotheses • Partner: UNR, SRBR, SBCV • Planned for: 01/07/2011 • Coronary stents • Partner: BWGIC and Doctors college for the care program of cardiac pathology (subsection of interventional cardiology) • Planned for beginning 2012
ACHIL: Ambulatory Care Health Information Lab • Clinical data registry for care trajectory assessment • Partner: WIV – ISP • Planned for 2012
Legal context (1) • 21/08/2008 Law creating and organizing the e-health platform. • Art. 37 – 39: “e-care vzw/asbl” The State, RIZIV/INAMI/NIHDI, mutualities and organisations of professionals and institutions can create an association • Objectives: • Governance of solutions concerning storage and exchange of health data in order to support collaboration between health care actors. Dimensions: Quality of care, continuity of care, patient safety, simplification of administrative procedures, research.
Legal context (2) • Objectives: • Appoint the partner(s) who have responsibility for data handling. • Prioritize and plan public authority investment and roll out. • Asbl/vzw under construction
Other relevant development • EMDMI labeling • Grammatical and Semantic interoperability • Easy: transfer and handling of conditional reimbursement demands and authorization or notifications (Chapter IV and Qermid). • E-recipe • BelRAI • Last but not least (and first in time!)! The Cancer Registry