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Structural Barriers to PLHIV Participation AIDS 2012 July 26, 2012 Prepared by the U.S. PLHIV Caucus. History of GIPA Greater Involvement of People with AIDS. Denver Principles - Denver, 1983 Paris Declaration - UNAIDS on GIPA GNP+, ICW. Mechanisms.
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Structural Barriers to PLHIV Participation AIDS 2012 July 26, 2012Prepared by the U.S. PLHIV Caucus
History of GIPAGreater Involvement of People with AIDS • Denver Principles - Denver, 1983 • Paris Declaration - UNAIDS on GIPA • GNP+, ICW
Mechanisms • While there is strong support for the GIPA principles in theory, practice lags far behind due to a broad range of socioeconomic, cultural, political and institutional barriers.
Participation Barriers • The complexity of these barriers can make meaningful PLHIV engagement at international gatherings difficult: • Stigmatization • Poverty • Discrimination • Credentialism • Health-related challenges
Participation Barriers • Additional barriers • Other issues taking priority • Lack of information about opportunities • Lack of capacity to engage in research • Lack of solidarity among people living with HIV themselves, reflecting the prejudices of the wider society
Addressing Barriers • Continue and enhance facilitators • Valuing lived experience • Training and mentoring opportunities • Providing financial compensation • Accommodating PLWHA's needs
Mechanisms • Representatives on decision-making and planning bodies • PLHIV consultations • Feedback mechanisms (i.e. evaluation) • PLHIV employment • PLHIV volunteers
Advocacy • Needed: Sustained advocacy to tackle participation barriers • Travel restrictions • Impact on specific population groups: sex workers, substance users, etc. • Denial of travel visas • Investment in PLHIV participation
Advocacy • How • Build our capacity • Early and intensive outreach • Resource development • Fundraising • Matching challenges • Educational club
Thank You Vanessa Johnson Founding Member & Advisory Board Member U.S. Positive Women’s Network (PWN) vjohnson84bj@gmail.com www.pwn-usa.org