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Milwaukee Lifecourse Initiative for Healthy Families. Engaging Cross-Generational Input Groups Summary June 15, 2011. Purpose. Reveal personal stories, insights and perspective Enhance understanding of the problem and add strength to proposed solutions. Participants.
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Milwaukee Lifecourse Initiative for Healthy Families Engaging Cross-Generational Input Groups Summary June 15, 2011
Purpose Reveal personal stories, insights and perspective Enhance understanding of the problem and add strength to proposed solutions
Participants • Nine discussion groups • Total of 75 participants • Participants experience loss either themselves, within family or close friend • Miscarriages • Still Births • Infant Death
Cross-Generational Engagement • Adolescent Girls • Teen Mothers • Adult Women • Professional Women • Grandmothers • Group Home Women • Adolescent Boys • Adult Males • Grandfathers
Process • Recruitment and Pre-screening of Participants • Stipend offered as incentive • Facilitation of Group Discussions • Participant attendance • Video Record of Discussions • Participant agreement
Group Questions • Who do you know that lost a baby before its first birthday? What happened? • How did the loss impact that person/you and their family? • Why does the person/you think this happened? • Why did the doctors say this happened? • What could they have done to prevent this? • Are you aware of ways a person can prevent loosing a baby?
Impact of the Loss of a Baby • Families devastated and torn apart • Still think about the baby years later • Mothers felt responsible • Parents blame one another • Blame loss on previous abortions
Why Participants/Parents Thought the Loss Happened Actions of mothers or others involved Accidents Co-sleeping Unhealthy lifestyle AODA Not seeing a doctor Stress Poor living conditions Medical causes Family history SIDS Unhealthy babies God’s choice
Baby was born with medical problems SIDS Unhealthy lifestyle of mother Little communication from doctors about what happened Why the Doctors Said the Loss Happened
What Could Have Been Done to Prevent the Loss • Better childbirth/family planning • Need for better housing/community support • Less stress
Generational Differences/Similarities • Cross-generational differences in infant care • Safest way to place baby to sleep • Smoking during pregnancy • Cigarettes vs. marijuana • Belief mother needs to “learn how to relax”
Gender Differences/Similarities • Adolescent boys were the hardest group to get involved • Few participated • Not informed about details • Male perception of pregnancy talk • Women feel loosing babies is hereditary • Women carry all the load of family issues
Relationship with Doctors • Change in relationship with doctor over generations • Demand for more education about pregnancy • Preparing for pregnancy • Addressing existing medical conditions • Spacing between pregnancies • Healthy living • Doctor comments to parents: • Mothers not taking care of themselves • “The baby wasn’t strong enough” • No additional information offered
Other Health Issues • Many mothers experienced multiple infant losses • Still carry burden of loss with them • Mothers had pre-existing medical conditions