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What is motor neurone disease?

What is motor neurone disease?. A fatal, rapidly progressive disease that can affect any adult at any time Attacks the nerves that control movement; people can still think and feel, but their muscles refuse to work

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What is motor neurone disease?

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  1. What is motor neurone disease? A fatal, rapidly progressive disease that can affect any adult at any time Attacks the nerves that control movement; people can still think and feel, but their muscles refuse to work It can leave people locked in a failing body unable to move, walk, talk and eventually breathe

  2. What is motor neurone disease? Five people die every day in the UK from MND Around half of those diagnosed die within 14 months • There are around 5,000 people living with MND, in the UK, at any one time • There is currently no diagnostic test, no effective treatment and no cure

  3. The MND Association The only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning Formed in 1979 by a group of volunteers with experience of living with or caring for someone with MND

  4. The MND Association Has over 3,000 active volunteers and around 140 employed staff whose specialist skills are dedicated to improving the lives of people affected by MND now and in the future Has nearly 8,000 members helping to strengthen our voice to ensure everyone living with MND has access to the best possible care Relies almost entirely on voluntary donations

  5. Our mission We improve care and support for people with MND, their families and carers We fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society

  6. The XXX Branch/ Group • One of 90 volunteer-led branches and groups across England, Wales and Northern Ireland • Covers the area of xxxx • Volunteers work together to: • Provide local support • Raise awareness • Campaign • Fundraise on behalf of people living with MND

  7. The XXX Branch/ Group Insert additional information about your branch or group, for example: Your support meetings (where/ how often/ format) What you have funded Your newsletter/ website Your Association Visitor team

  8. The Future People living with MND can’t wait. We need your help!

  9. How you can help Fundraise: A fantastic way to involve friends and family Help fight back against MND and have some fun Ideas and events to suit all ages and abilities We will be on hand to support you every step of the way

  10. Every donation makes a difference £10 provides an information pack for a newly diagnosed person with MND £75 funds an MND expert researcher for half a day £250 buys a specialist joystick to enable somebody to continue working £1,000 buys a riser recline armchair to help maintain a level of mobility for those who can no longer stand unaided

  11. How you can help Campaigning: Join our online network of campaigners and receive regular updates on our campaigning activities and information on how you can get involved For example Show your support by signing the MND Charter Email your local MP and ask them to sign the MND Charter Visit: www.mndcampaigns.org

  12. How you can help Volunteering: Get involved in our branch/ group We are looking for volunteers to join our committee to help us to make a difference locally Become an Association Visitor By offering confidential, emotional support, accurate information and help to access the right services and equipment, you can enable people affected by MND to live their life more easily and make informed choices

  13. How you can help Raise awareness: Hold your own event or get involved with our current awareness campaign Visit www.mndassociation.org

  14. How you can help Become a member: Help us to strengthen our voice as we campaign to ensure everyone living with MND has access to the best possible care, no matter where they live You will become part of a powerful support network and can meet with others and share experiences at our local and national events and conferences Visit www.mndassociation.org/membership

  15. Find out more/ Keep in touch Website: www.mndassociation.org Facebook: www.facebook.com/mndassociation Twitter: www.twitter.com/mndassoc Branch/ Group website: www.insertwebaddress.org Facebook: www.facebook.com/yourfacebookname Twitter: www.twitter.com/yourtwittername

  16. Questions?

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