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The Respiratory Decision Making Process in ALS/MND “It is your decision”

The Respiratory Decision Making Process in ALS/MND “It is your decision”. Three Short Informational Videos A Package for ALS/MND Patients, Families, and Professionals The ALS Association The Les Turner Foundation The Forbes Norris ALS Research Center 2013. First Video: 16 minutes.

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The Respiratory Decision Making Process in ALS/MND “It is your decision”

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  1. The Respiratory Decision Making Process in ALS/MND“It is your decision” Three Short Informational Videos A Package for ALS/MND Patients, Families, and Professionals The ALS Association The Les Turner Foundation The Forbes Norris ALS Research Center 2013

  2. First Video: 16 minutes • Introduces Status of ALS • Importance of Developing a Care plan • Importance of staying informed about progression • Why you WILL have to make a decision or a decision will be made for you • Assurance you can always change your mind

  3. Second Video: 15 minutes • Briefly explains ALS respiratory failure; some diagrams • Answers some early common questions • Introduces some patients who tell their story and why they made their decisions

  4. Third Video: 17 minutes • Explains that progression continues • Discusses different respiratory options • Non Invasive Ventilator Support Options • Tracheotomy Ventilation: Major factors to consider, including option to quit; • Hospice Care with refusal of all interventions • Emphasis on “It is your decision”

  5. Short Video Trailer

  6. Final thoughts • Ready for Release Soon • To be made available on-line: link via our websites • CDs: to Support Groups, Neuro Clinics, ALS organizations, chapters, etc. • In English; no translations planned yet Questions?

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