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Enhancing Person-Centred Care through Research-Based Drama. Christine Jonas-Simpson, Ph.D., Sherry L. Dupuis, Ph.D., Gail Mitchell, Ph.D., Colleen Whyte, Ph.D.(c), Jennifer Gillies, Ph.D., and Jennifer Carson, Ph.D.(c) We declare no conflict of Interest. I’m Still Here. Clip from ISH.
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Enhancing Person-Centred Care through Research-Based Drama Christine Jonas-Simpson, Ph.D., Sherry L. Dupuis, Ph.D., Gail Mitchell, Ph.D., Colleen Whyte, Ph.D.(c), Jennifer Gillies, Ph.D., and Jennifer Carson, Ph.D.(c) We declare no conflict of Interest.
The Long Good-Bye the BURDEN of care the demented The 36 Hour Day a shell of himself challenging behaviours fading away doomed Loss of Self aggressive
Purpose • To demonstrate the lasting impact (over a one-year period) of research-based drama on family members of persons with dementia and professionals working in dementia care
Methodology and Method • human science/ phenomenology • set of 15 pre- and post-performance focus groups (n=106 participants) • interviews 6 weeks (n=99) and 12 months (n=83) after viewing
Process of Personal Transformation Through Research-Based Drama Opportunity to Bear Witness to Other’s Suffering
Process of Personal Transformation Through Research-Based Drama Expanding While Affirming Awareness and Understanding
Process of Personal Transformation Through Research-Based Drama Comfort, Confidence, and Courage to Change
Process of Personal Transformation Through Research-Based Drama Inspiring New Ways of Relating with Others and Society
Process of Personal Transformation Through Research-Based Drama Igniting Transformative Self-Reflection
“I am concerned with the performance of subversive...narratives... The performance of possibilities aims to create ...a...space where unjust systems and processes are identified and interrogated.” D. Soyini Madison, 1998
References • Jonas-Simpson, C., Mitchell, G. J., Carson, J., Whyte, C., Dupuis, S., & Gillies, J. (in press). Phenomenological shifts for healthcare professionals after experiencing a research-based drama on living with dementia. Journal of Advanced Nursing. • Mitchell, G., Dupuis, S., Jonas-Simpson, C., Whyte, C., Carson, J., & Gillies, J. (in press). The experience of engaging with research-based drama. Evaluation and explication of synergy and transformation. Qualitative Inquiry. • Dupuis, S. L., Gillies, J., Mitchell, G. J., Jonas-Simpson, C., Whyte, C., & Carson, J. (in press). Catapulting shifts in images, understandings and actions through research-based drama. Family Relations. • Mitchell, G., Dupuis, S., & Jonas-Simpson, C. (in press). Countering stigma with understanding: The role of theatre in social change and transformation. Canadian Theatre Review. • Mitchell, G. J., Jonas-Simpson, C. M., & Ivonoffski, V. (2006). Research-based theatre: The making of I’m Still Here! Nursing Science Quarterly, 19, 198-206.
Funded by the Social Sciences and Humanities Research Council (SSHRC) For information on the DVD version and teaching-learning guide: www.marep.uwaterloo.ca For information about the study: sldupuis@uwaterloo.ca or jonasimp@yorku.ca