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Promoting Diversity in the UCEDD Network. Royal Walker Institute for Disability Studies, University of Southern Mississippi Barbara Wheeler USC UCEDD. Cultural Competence. Cultural competence requires that organizations:
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Promoting Diversity in the UCEDD Network Royal Walker Institute for Disability Studies, University of Southern Mississippi Barbara Wheeler USC UCEDD
Cultural Competence Cultural competence requires that organizations: have a defined set of values and principles, and demonstrate behaviors, attitudes, policies and structures that enable them to work effectively cross-culturally. have the capacity to (1) value diversity, (2) conduct self-assessment, (3) manage the dynamics of difference, (4) acquire and institutionalize cultural knowledge and (5) adapt to diversity and the cultural contexts of the communities they serve. incorporate the above in all aspects of policy making, administration, practice, service delivery and involve systematically consumers, key stakeholders and communities. Cultural competence is a developmental process that evolves over an extended period. Both individuals and organizations are at various levels of awareness, knowledge and skills along the cultural competence continuum. (adapted from Cross et al., 1989
Cultural Diversity Differences in race, ethnicity, language, nationality, religion, etc. among various groups within a community. A community is said to be culturally diverse if its residents include members of different groups.
Racial/cultural/linguistic Disparities Refers to differences in outcomes due to: Race Culture Language
Evidence of Health Disparities: Racial and ethnic minorities are • MORE likely to • Die from breast cancer, despite similar mammography screening rates • Die from HIV/AIDS • Receive less desirable procedures, ie., lower limb amputations for diabetes • Be diagnosed with severe MH disorders, i.e., schizophrenia • LESS likely to • Receive routine medical procedures • Undergo bypass surgery • Receive kidney dialysis or transplants • Receive current Rx drugs for the same condition IOM, 2002; Kendall & Hatton, 2002
Educational Disparities: Brown v Board of Education, 1954 • Separate is not equal
Evidence of Disparities in Education: Latinos • While Latinos are not over-represented in special education in general, English-Language Learners (ELL) are seriously over-represented in two categories of special education: (1) mental retardation and (2) speech (LAS), especially at the secondary level. • The problem worsens over time with over-representation of ELL students in special education emerging by grade five and increasingly visible by grade twelve Artiles, Rueda, Salazar, & Higareda, in press
Aren’t R/C/L Disparities about being poor? • Even with documented economic gains for members of both majority and minority groups in the past 20 years, health disparities between races persist when SES is controlled for. Institute of Medicine, 2002; Kendall & Jones, 2002
Improving Cultural Responsiveness of the System and Promoting Equity The Role and Contribution of UCEDDs
W W W W W N W W W N W N W N N W W W N W N W W N W W W W W W N W N N N W W W W W W W N 30-39% 30-39% 40-50% 40-50% 51% or more 51% or more States with 30% or more Minority Populations New York Massachusetts Nevada New Jersey California Colorado Virginia Illinois Maryland North Carolina Arizona New Mexico South Carolina Mississippi Georgia Texas Florida Louisiana Hawaii Legend: Legend: • Mission N Nirs W Website
UCEDD Projects: Training • 8 UCEDDs have a cultural diversity coordinator • Targeting under-represented minorities into careers in MCH (Alabama St, and Civitan) • Cultural diversity training for EC professionals serving Latino families (Arkansas) • Multi-cultural education (monograph) (Rose Kennedy Center) • Cross-cultural competence training for MH professionals (USC) • Navajo Nation Comprehensive System for Personnel Development (New Mexico) • LEND programs with Cultural Competence information
UCEDD Projects: Research • M-C perspectives on self-determination (Hawaii, USC, Kansas) • Barriers to health services for people IDD from immigrant communities (Minnesota ICI) • NIH Partners in Research—Barriers to participation in bio-medical autism Research for Latino families (USC) • Needs assessment of barriers to quality care for Southeast Asians (UC Davis) • Needs of families with internationally adopted young children from China (Connecticut UCEDD)
UCEDD Projects: Community Services and TA • Developing culturally appropriate vocation rehab. programs (NAU) • Growing in Beauty partnership—IDEA services to Navajo communities (NAU) • Building capacity of minority CBOs (USC) • Health Services project—Southeast Asian immigrants (UC Davis) • Project Bloom—developing CC services (JFK Partners, Colorado) • Colorado Family Support 360 (JFK Partners) • Juniper Gardens Childrens Project (education, primary healthcare, counseling, arts) (Kansas)
UCEDD Projects: Community Services and TA (con’t) • Primeros Pasos—EC intervention in Latino Community (Johns Hopkins) • American Indian Disability TA Special Resource Center (Montana) • Indian Childrens Program Specialty Resources (New Mexico) • Cheyenne River Reservation/Pine Ridge Reservation Dev. Clinics (South Dakota) • Project Early Reading Intervention and Project World vocabulary development (Texas A&M) • Indian Childrens Program diagnostic and clinical services (Utah State)
UCEDD Projects: Community Outreach and Education • Culture competence training for State Employees (Illinois IDHD) • Training for child care providers on serving culturally diverse children and families (Arkansas Partners for Inclusive Communities) • Youth Development Training: Diversity and Assets (Georgia UCEDD) • Transition training for American Indian educators and Administrators (Minnesota ICI) • Training, Resources and Information for the Advancement of Degrees for youth from underserved areas (U. of Southern Mississippi) • Camino Seguro West—bilingual online information and services database (Bolling Center, Tennessee) • Hispanic Disability Outreach program (Vanderbilt, Tennessee) • Website in Spanish (Puerto Rico)
UCEDD Projects: Systems Change • National Center on Cultural Competence (Georgetown) • NJ Statewide Network on Cultural Competence (Boggs Center)
Improving cultural responsiveness in the disability field Where do we go from here?
Minority/ Civil Rights Movement Disability Movement Minority/ Civil Rights Movement Disability Movement Parallel Movements: Finding the common ground