The Development of the electronic Primary Care Research Network ePCRN

1. The Development of the electronic Primary Care Research Network (ePCRN) NIH Roadmap Award, BAA-RM-004-23 Re-Engineering the Clinical Research Enterprise: Feasibility of Integrating and Expanding Clinical Research Networks Federation of Practice-Based Research Networks University of Minnesota Department of Family Medicine and Community Health American Academy of Family Physicians, CHIT

2. Outline The NIH Roadmap Next generation of RCTs Translation of research into practice Information system applications Practice Based Research Networks ePCRN NECTAR CCR implementation in the ePCRN architecture Data warehouse Integral to communication EHR interoperability Questions and discussion

3. Outline The use of the CCR in Next generation of RCTs Problems of existing RCTs Why the Roadmap is necessary Differences with the next generation of RCTs Involvement of the National Clinical Research Associates Translation of research into practice Why this has not occurred in the past Infrastructure problems The technology to support highly distributed datasets Commitment of the National Institutes of Health / Development by the NIH 2.2 billion Practice Based Research Networks ePCRN NECTAR The development of a data standard is essential to support these broad initiatives. CCR implementation in the ePCRN architecture Integral to the construction of the data warehouse Integral to communication EHR interoperability Information out Opportunistic identification of eligible patient in NIH Research portal development Quality improvement and performance measures Questions and discussion

4. The NIH Roadmap for Medical Research Purposes: Accelerate the pace of discoveries Develop more rapid translation from laboratories to patients and back Position NIH to address evolving public health challenges