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Spotlight on community support

Spotlight on community support. Prof Mayur Lakhani CBE FRCP FRCGP . Childhood cancer. 1,700 children diagnosed each year, 2,100 teenagers and young adults Treatment is centralised 21 childhood cancer centres; 8 for teenagers Shared care Communication between care settings?

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Spotlight on community support

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  1. Spotlight on community support Prof Mayur Lakhani CBE FRCP FRCGP

  2. Childhood cancer • 1,700 children diagnosed each year, 2,100 teenagers and young adults • Treatment is centralised • 21 childhood cancer centres; 8 for teenagers • Shared care • Communication between care settings? • Families travel considerable distances

  3. Children: clear example of need • Clear example of where good community care & support could make a great impact • NICE Improving Outcomes Guidance • Fragmentation • How can we get better integration and coordination?

  4. What do families need? • CLIC Sargent consultation days • Talking cancer in February • Survivors conference in September • Surveys • young people • siblings • parents/carers

  5. Findings… • Keeping up with education • Financial support & employment • Emotional support • Keeping up with social activities • Practical support • Clinical support in the community

  6. What is good community care & support? • Every Child Matters • Be healthy • Stay safe • Enjoy & achieve • Make a positive contribution • Achieve economic well-being

  7. Emerging ideas • Key worker • One point of contact • Clinical & non-clinical care • Standard assessment & care planning • Planning at defined points • Transitions • Community MDT • Close links with the primary health care team • Palliative care • Survivorship

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