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POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009

POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009. Time is of the Essence. Ireland 2008 – Size of Datasets Cancer Registries. 29,000 Cancer Cases 11,000 Cancer Deaths 94,000 Living with Cancer (1994-2004) excluding Non-Melanoma Skin Cancer

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POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009

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  1. POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009

  2. Time is of the Essence

  3. Ireland 2008 – Size of DatasetsCancer Registries • 29,000 Cancer Cases • 11,000 Cancer Deaths • 94,000 Living with Cancer (1994-2004) excluding Non-Melanoma Skin Cancer • 450,000 Cases to date

  4. Range of Data Items • Patient – Demographic Details/Comorbidity • Disease • Services Used, eg diagnostics • Screening histories • Geography of Disease • Treatment • Survival • Quality of Life

  5. Expect the UnexpectedThe Patient - Communication • Referral to dieticians, especially GUT cancers • Note that discussion with patient • Information re diagnosis/prognosis in GP letter • Speed GP communication with MDT management systems • Psycho-social referrals

  6. Unique Datasets Risk Assessment • PSA Tests on Population Level* • Barrett’s Oesophagus* • Colorectal Polyp Register • Service Pathways* *All Ireland

  7. International Linkages • NCI Cancer Prevention Fellowships • NCI Cancer Prevention Summer School • Barrett’s Consortium • International Assn Research Cancer • European Network Cancer Registries www.qub.ac.uk/NICR

  8. Potential For Linkage Other Datasets • Biobanks • Census – N.I. Longitudinal Study • GP Research Database • Cancer Waits/MDTS • N I TELLUS Study

  9. Tellus Study (Arsenic Levels)

  10. Changing Cancer Services- New Clinical Data Sources

  11. CaPPs: Patient Pathway View

  12. CaPPs: Patient Pathway View

  13. CaPPS MDM Screen: Staging Work Up

  14. CaPPS: Treatment screen

  15. CaPPS: Clinical Nurse Specialist/AHP

  16. CaPPS: Follow up screen

  17. Research Areas • Surveillance of Early Disease • Modelling Future Trends • Economics of Cancer • Patient Experience • Service Quality • Improved Services for Patients

  18. N. Ireland CancerMulhouse BuildingGrosvenor RoadBelfastBT12 6BJTel 028 9063 2573Fax 028 9024 8017Email nicr@qub.ac.ukWeb www.qub.ac.uk/nicr National Cancer Registry IrelandBuilding 6800 Cork Airport Business Park Kinsale Road Cork Ireland Tel 00 3532 1431 8014Fax 00 3532 1431 8016Email info@ncri.ieWeb www.ncri.ie

  19. CaPPS: Monitoring Cancer Targets

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