Information: to share or not share? Information Governance Review

1. Information: to share or not share?Information Governance Review Karen Thomson Information Governance Lead

2. What this session is about • Quick recap on Review • Headlines - Direct Care & Commissioning • Questions – an opportunity to contribute to the review • Consider questions for the Q & A this pm?

3. Review overview • Scope – when consent needed, how record consent / dissent, ensuring a secure basis in law for processing, IG in the new landscape • 15 panel members different backgrounds • Evidence gathering – verbal, written, lit review – thematic • Questions for direct care and commissioning on website – www.caldicott2.dh.gov.uk

4. Headlines - Direct Care • Agreed common terminology would be helpful – CHRE volunteered to lead • Clarity about when the social worker is part of the care team and covered by implied consent • When non-registered professions e.g. HCA are covered by implied consent • A better understanding of what is within the social contract of implied consent • And of the need to make this explicit to patients and service users

5. Headlines - Commissioning • Need for large quantities of data to create an innovative culture • Commissioning Intelligence Model will involve setting up CSSs and DMICs & access to PID • Desire to make IG an enabler – information is an asset – IG adds value thro data quality and protecting this asset

6. Headlines - Commissioning • Role of CQC – not an IG regulator – context of quality of care and managing clinical risk only • Consideration of the future of the toolkit & usefulness for commissioners • Lack of clarity about data controller / data processor relationships

7. Inputting to the Review • Any questions about the Review? • Dates for evidence sessions on website • Public Health session – today • Adult Social Care – 4 July Manchester • Research – 10 July • Consent and control 18 July • Citizen, patients and clients – Olympic period – outside of London • Verbal sessions to end of October – written evidence over the summer

8. Opportunity to input • 3 questions sent in advance and in your pack for you to consider • Capture key elements and include in a report on this event to the IGR Panel • Would also like to think about questions you may want asked at this afternoon’s Panel Q & A • Take questions individually or together?

9. Questions asked • What are your biggest concerns around IG in the future, given the new powers in the H & SC Act 2012?

10. Questions asked • What key IG concerns are you hearing from patients, service users and carers? • And from H & SC orgs, clinicians, practitioners & researchers in relation to the future?

11. Questions asked • What are your main concerns about the use of identifiable data for purposes other than direct care of the individual for example in support of commissioning, improving services for patients and clinical outcomes?

12. Questions asked • Your key concerns around IG in future? • Concerns are you hearing from patients, service users and carers? • Concerns from H&SC orgs, clinicians, practitioners & researchers? • Your concerns about the use of identifiable data for purposes other than direct care

13. Q & A • Anything you want to ask this afternoon? • Who’s willing to ask? – volunteers please

14. Thank you!