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An Innovative Teleconference Co-sponsored by Mental Health America May 9, 2007

An Innovative Teleconference Co-sponsored by Mental Health America May 9, 2007. UP ENN C OLLABORATIVE ON C OMMUNITY I NTEGRATION. UP ENN C OLLABORATIVE ON C OMMUNITY I NTEGRATION OF I NDIVIDUALS WITH D ISABILITIES presents Parenting with a Mental Illness. After the Teleconference,

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An Innovative Teleconference Co-sponsored by Mental Health America May 9, 2007

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  1. An Innovative Teleconference Co-sponsored by Mental Health America May 9, 2007 UPENN COLLABORATIVE ON COMMUNITY INTEGRATION UPENN COLLABORATIVE ONCOMMUNITY INTEGRATIONOF INDIVIDUALSWITHDISABILITIESpresentsParenting with a Mental Illness After the Teleconference, please visit our web site at www.upennrrtc.org

  2. Teleconference Presenters Katy Kaplan, M.S.Ed. (moderator) Joanne Nicholson, Ph.D. Rebekah Leon, BA, C.S.W. Edie Mannion, M.F.T. UPENN COLLABORATIVE ON COMMUNITY INTEGRATION Parenting with a Mental Illness

  3. Please Note: The Teleconference Presenters have generously made their PowerPoint presenta-tions available on this web site. Any information used from these presentations must be cited, and proper credit given to the author. Thank you! UPENN COLLABORATIVE ON COMMUNITY INTEGRATION

  4. Parenting with a Mental Illness Teleconference Presenter Joanne Nicholson, Ph.D. UPENN COLLABORATIVE ON COMMUNITY INTEGRATION

  5. Creating Options for FamiliesJoanne Nicholson, Ph.D.Center for Mental Health Services ResearchUniversity of Massachusetts Medical SchoolWorcester, Massachusetts, USAJoanne.Nicholson@Umassmed.edu508-856-8712www.parentingwell.orgMay 9, 2007

  6. Toni Wolf, Executive Director 82 Brigham Street Marlborough, Massachusetts 01752 USA 508-485-5051 twolf@employmentoptions.org

  7. Who We Are at UMMS: • Multidisciplinary group: psychology, occupational therapy, public policy, mental health law, rehabilitation • Researchers, clinicians, advocates, family members • Parents with mental illness • Strategic Planning Group

  8. EO, Inc. Mission Statement:Through inspiration, support & encouragement, Employment Options creates a home-away-from-home, where people can overcome barriers to employment and discover personal growth, self-sufficiency, and hope.

  9. Our Partnership • 1995 –UMMS focus group at EO • Members started talking • Toni started listening • Family Project began • 1996 – DMH supported housing contract for services for 7 families

  10. First Steps • Identified parents in club • Began to identify needs • Christmas presents • Suggestions for visits • Held holiday party

  11. The (original) Family Project • DMH supported housing contract • Parent is “identified client” • Need for DMH eligibility • Difficult to obtain • Requires major functional impairment(s)

  12. Our Partnership (cont’d.) 1997 – NIDRR-funded Parenting Options Project • Regional Clubhouse Parenting Consortium • ParentLink Newsletter • Parent Work Groups • “Parenting Well When You’re Depressed”

  13. Supervised visitation Home visits Collateral contacts Crisis on-call Social activities Advocacy for children Family Project Developments

  14. Lessons Learned • Focus on entire families • “Warm line” vs. crisis on-call • Aggressive care management • Respite services • Flexible funds • Knowledge of adult, child & family systems • “Messy” legal issues • Long-term involvement optimal

  15. Our Partnership (cont’d.) 1999 – Clubhouse Family Legal Support Project (CFLSP) • NAPIL funding • 2002 – DMH funding • 2003 – Massachusetts Bar Foundation funding

  16. Clubhouse FamilyLegal Support Project • Consultation to adults re: custody & family situations • Direct representation • Attorney at Mental Health Legal Advisors Committee in Boston • Attorney, parents & clubhouse advocate work together

  17. Our Partnership (cont’d.) 2002 – SAMHSA-funded “Strengthening Families” Community Action Grant • Develop consensus re: families’ needs • Consider feasibility of models like Invisible Children’s Project (ICP)

  18. Activities of SAMHSA-fundedStrengthening Families Project • Stakeholders recruited • Champions created • Data re: needs collected • Community resources identified • Relevant model (ICP) examined • Agreement to adapt & implement family model achieved

  19. Outcomes of SAMHSA-funded Strengthening Families Project • Concept paper • Advocacy plan • Exploration of funding alternatives • Development of key stakeholder relationships • Proposed model

  20. MA Dept. of Social Services MA Dept. of Mental Health – children’s services MBHP – Medicaid MCO Family Network (early childhood) CMHCs Clinics Homeless Services Boys & Girls’ Clubs Early Intervention Local hospitals Parents Strategic Relationships Formed

  21. Family Options “Building resources and relationships to promote resilience and recovery in parents with mental illness and their children”

  22. Intervention Innovation • Involves entire family, including children of all ages (<18) who may or may not have “problems” • Draws from what we know about evidence-based practice for adults with mental illness & parenting • Builds on what we have learned works best in a clubhouse setting • Requires shifting agency focus

  23. Theoretical Foundation • Psych rehab (e.g., Nicholson & Henry, 2004) • Attachment theory (Mahler et al.) • Self-efficacy theory (Bandura et al.) • Motivation/behavior change theory (Miller et al.) • Strengths case management (Rapp et al.) • Wraparound model (SOC) • Resilience/developmental assets (SearchInstitute)

  24. Family Options Key Concepts • Family-centered • Strengths-based • Family-driven & self-determined • Recovery & resilience

  25. Family Options Key Processes • Engagement & relationship building • Empowerment • Availability & access • Liaison & advocacy

  26. Family Options Team • Supervisor & 3 Family Coaches • Clinical Consultant • Provide: • Intensive outreach • Strengths assessment & goal setting • 24-hour availability • Flexible funds • Liaison & advocacy

  27. Family Options Outcomes • Parent & Child • Well-being • Functioning • Supports & Resources • Family • Empowerment • Supports & Resources

  28. Implementation Study • Study process of implementing Family Options • Examine impact of required paradigm shift within agency from focus on individual adults to families

  29. Challenges to Implementation – Program Level • Staffing, hiring, and training • Actualizing innovative concepts • Working with complex families • Allocating scarce resources

  30. Challenges to Implementation – Agency Level • “Integration” of new program in existing agency • Sustainability • “We didn’t anticipate…..”

  31. Challenges to Implementation – Community Level • Nurturing and educating community partners • Identifying suitable community resources • Respite • Housing

  32. “I think my children had difficult experiences being raised by a mother with mental illness. I’m not going to pretend that it’s all been easy. But there isn’t anything that we experience that doesn’t come with some blessing. And I think there has been blessing, even in the hard stuff.”-Mother of two, living with mental illness

  33. Parenting with a Mental Illness Teleconference Presenter Rebekah Leon,B.A., C.S.W. UPENN COLLABORATIVE ON COMMUNITY INTEGRATION

  34. The Consumer Parent Support Network; A Comprehensive New Jersey ProgramPresenter: Rebekah Leon, BA, C.S.W.

  35. How to Support Parents with a Mental Illness Wednesday, May 9, 2007 The Consumer Parent Support Network: a Successful Program for Parents Coping With Mental Illness and Their Children

  36. The purpose of the Consumer Parent Support Network is to support parents with a diagnosis of mental illness in their parenting efforts and to promote the healthy functioning of the family unit.

  37. Learning Objectives At the end of this presentation the participant should be able to: • Identify challenges specific to parents with mental illness • Recognize risk factors associated with untreated parental mental illness • Understand the Consumer Parent Support Network Program

  38. We know a great deal about children from studies: • Children whose parents have a mental illness are at greater risk for developing problems than children whose parents do not. • Many children whose parents have mental illness do well. (Nicholson, 1999)

  39. Challenges Specific To Parents With Mental Illness • Medication • Hospitalization • Relationships with helpers • Advocacy • Child’s perception of parent’s illness • Child’s role in illness management • Communicating with child about mental illness (Nicholson, 1999)

  40. Parental Mental Illness Risk Factors • Decreased responsiveness/withdrawn from the child • Limited ability to nurture • Less positive and more negative behavioral interactions • The more severe and chronic the mental illness the greater the risk

  41. Risk Factors Continued • Inappropriate responsibilities placed on the child • Multiple separations from the child • Poverty • Lack of social supports

  42. Individual Consultation Parenting Education Advocacy and Support Linkage and Referral Planning for Crisis Events Workshops Cross Systems Collaboration Play and Recreation Assistance with Household Management Parent Mentor Case Management Critical Components to Program Success

  43. Flexible Hours Outreach Based Services Bilingual Staff Strong Collaboration Services Free of Charge Individualized Planning Advocacy Utilize Parent Advocates Mental Health Education Full Involvement of Parent Entire Family Involved Hands on Demonstration Key Components to Service Delivery

  44. Ethnicity • White 19 • African American 20 • Hispanic 39 • Other 2 (n = 80)

  45. Age of Participants • 21 to 30 18 • 31 to 40 31 • 41 to 50 23 • 51 or older 8 (n = 80)

  46. Marital Status of Participants • Single, never married 37 • Married 20 • Divorced 14 • Separated 8 • Widowed 1 (n = 80)

  47. Number of Children • One child 33 • Two children 21 • Three children 19 • Four children 5 • Five children 3 (n=167)

  48. Income of Participants • Receiving AFDC/Cash Assistance 50 • Working, Income Below $17,050 18 • Working, Income Below $25,575 0 • Working, Income Below $34,100 0 • Working, Income Above $34,100 6 • Financial Support from Family 6 (n = 80)

  49. Organizational Structure • Board of Directors • Executive Director • Associate Executive Director • Director Of Consumer Parent Support Network • Assistant Director of Outreach Services • Support Specialist • Parent Advocates • Administrative Assistant • Volunteers • Interns

  50. Parent Challenges Prior to Involvement with CPSN • 57 out of 80 parents were not receiving consistent mental health treatment • 80 out of 80 parents had many concerns regarding interactions with their children • 73 out of 80 parents were in significant financial distress • 61 out of 80 parents are raising their children without support from other parent

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