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Headway East London Continuing Community Rehabilitation

Headway East London Continuing Community Rehabilitation. ABIL Presentation 22 nd January 2008 Anthony Bonfil, Manager, Headway East London. Headway In London. Headway Groups and Branchs London. Headway East London (HEL) Headway North London Headway North West London – HNWL

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Headway East London Continuing Community Rehabilitation

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  1. Headway East London Continuing Community Rehabilitation ABIL Presentation 22nd January 2008 Anthony Bonfil, Manager, Headway East London

  2. Headway In London

  3. Headway Groups and Branchs London • Headway East London (HEL) • Headway North London • Headway North West London – HNWL • Headway Romford • Headway SE London/NW Kent • Headway South West London (HSWL) • Headway West London

  4. Headway Groups and Branchs • Headway North London (HNL)- Affiliated to Headway UK c/o Department of Neurosurgery, Royal Free Hospital, London, NW3 2QG - Contact: Colin Shieff , Julie Bridgewater - Tel No: 0207 372 4477 (0207 830 2097/8)  Fax: 0207 8302560 Email:  Website:http://www.headwaynorthlondon.org • Headway North London is a long established branch, offering support and advice as a self-help group for brain injury survivors, families, carers and interested professionals in central and north London. • Monthly Support Meeting for survivors and carers • Catchment: Camden, Barnet, Brent, Enfield, Haringey, Islington, Westminster etc. • Meetings offer information on topics related to brain injury • Organise and run two social events in Summer and Winter. Members are encouraged to become involved in the activities of the group and we seek outside volunteers to support our members on a 'buddying' scheme as well as current and future developments including fundraising and awareness raising projects • Headway North London will also visit other organisations to give talks about brain injury to raise awareness of the effects and outcome and to assist in promoting the work of Headway and encourage partnerships with other organisations. • Runs a Helpline answering service for enquiries on support and information. • Runs a Monthly Counselling service for survivors and carers • Explore the possibilities of creating a Headway House in the future

  5. Headway Groups and Branchs • HEADWAY SE London/NW Kent. Registered Charity. A Company Limited by Guarantee • Headway House: Bostall House, Goldie Leigh Hospital, Lodge Hill, Abbeywood, London SE2 0AY. Tel/Fax 020 8319 7148. Email headway.selnwk@virgin.net • Principal contact : Allison Brown, Chief Officer • Aims of the service: To support those whose lives are affected by Acquired Brain Injury (ABI) • Description of service: Headway SELNWK runs a HEADWAY House – 4 days per week and an Outreach Centre open once a week. SELNWK also provides an advice, support and information service once a week at Kings College Hospital. • Catchment area: Bexley, Greenwich, Lewisham, Southwark, Lambeth and Bromley and parts of Dartford and Gravesend. • Staff; SELNWK has a Chief Officer, Secretary, Centre Care Co-ordinator, Care Assistant, Activities and Events Co-ordinator, Family Support and Benefit Co-ordinator an Outreach/Development Co-ordinator, Cook. Plus additional tutors on contract • Volunteers: SELNWK has over 25 volunteers • Groups served: Approximately 60 members attend 1 – 3 days a week over a 4 day period. (Mon, Wed, Thurs, Fri) at HEADWAY House. Approximately 15 – 20 members attend the Outreach Centre one day a week. • Carers: SELNWK runs two support groups • Funding: SELNWK is mainly funded by local authorities in the region on a placement basis.

  6. Headway Groups and Branchs • Headway West London. Affiliated to Headway UK – the brain injury association • Contact: Kate Woodward-Nutt, Chair, Alison Isherwood, Treasurer. Tel No: 07948 709784  Fax:  Email: headwaywestlondon@yahoo.co.uk • Headway West London provides a monthly support group • The support group is run by volunteers and led by a health care professional • Meetings are be held at Percy Barton House 33-35 Dawes Road, Fulham, SW6 7DT • As well as a varied programme of activities and speakers the group offers the opportunity for people to chat about their experiences with others who understand what it is like living with a brain injury. The group also provides information about various aspects of brain injury and can signpost people to other sources of information and support • New members are always welcome • The group also produces a monthly newsletter

  7. Headway Groups and Branchs • Headway North West London - HNWL. Registered charity. Bentley Day Centre - 94 Uxbridge Road, Harrow HA3 6DH. Tel: 07726 325222, 020 7431 3956. Email: headway.northwestlondon@hotmail.co.uk • Principal contacts: Dr Frances Clegg, Chair; Fiona Lapraik, Co-ordinator • Aims of the service: HNWL aims to provide support and information for people with an ABI, their families and carers • Description of service: HNWL Link currently runs a drop in service once a week. HNWL also runs support groups in Harrow and Brent. • Catchment area: London Boroughs of Barnet, Brent, Ealing, Harrow, Hillingdon; Watford. • Staff: HNWL employs a Co-ordinator. • Volunteers: HNWL has c.15 regular volunteers • Groups served: The Link now has 6 regular attenders with ABI attending one day per week • Carers: HNWL runs support groups in Harrow and Brent • Funding: HNWL is currently exploring funding options, and is in the process of recruiting a volunteer fundraiser • Referral process: HNWL receives referrals from Social Services, PCTs, health and social care professionals, families, and self-referral. • Future development plans: HNWL aims to develop an individual counselling service; establish a newsletter, to be produced quarterly; develop training courses

  8. Headway Groups and Branchs • Headway South West London (HSWL) - Affiliated to Headway UK – the brain injury association; Tel: 07722 861642 Email: headwayswlondon@gmail.com • Support Group meeting venue: Wolfson Rehabilitation Centre, Copse Hill, Wimbledon SW20 0NQ. • Principal contacts: Chair: Jenny Cairns; Treasurer: Evelyn Bleasdale • Aims of the service: Aims to promote understanding of all aspects of brain injury and help provide support and information to those with a brain injury, their families, carers and relevant professionals. • Description of service: Monthly newsletter; Helpline; Monthly Support Group meeting: • Catchment area: London Boroughs of Kingston, Merton, Richmond, Wandsworth • Staff: None • Groups served: Monthly support group. Attendance at the support group meeting varies between 5 and 20 depending on the focus of the session. Attendees include BI survivors and carers. • Carers: Nothing specific for carers • Referral process: Currently most people self-refer. • Other services and partnerships: Currently developing a partnership with Kingston Social Services to run a half-day weekly session for people with acquired brain injury.

  9. Headway Groups and Branchs • Headway Romford. Affiliated to Headway UK – the brain injury association • Contact: Linda &, Gerry Telephone No: 0208 595 6141  Fax: 0208 593 4151   • Services: Headway Romford provides a monthly support group for people with acquired brain injuries, their families and carers. • Where: The meetings are held in Rush Green, generally on a Thursday evening.

  10. Headway East London Mission statement "To provide a better quality of life for people with acquired brain injury and their families and carers

  11. What does Headway East London do? • Based in Tower Hamlets, Headway East London (HEL) is the only day service specifically for people with an acquired brain injury (ABI) in North and East London • The Headway House welcomes approximately 90 people over five days a week, with each attender participating one to two days per week. There are 21 staff members, some of whom are P/T and on contract and approx. 40 regular volunteers, many of them brain injury survivors themselves • HEL is a voluntary organisation dedicated to providing a better quality of life for people with ABI, their families and carers • HEL runs a Headway House - a social environment where people come to regain lost skills, increase their confidence and make new friends • The Headway House is open Mon-Fri 10.00am -3.00pm • The Headway House is the only brain injury-specific day service in inner London • HEL helps people learn how to manage more effectively in the community • HEL offers advocacy support, advice and information to anyone who has been affected by ABI • HEL is affiliated to Headway, the brain injury association

  12. HEL - Headway HouseConcept to Reality • Steering Committee formed April 1996 • Charitable status achieved February 1997 • Headway House opened one day a week in March 1998 • Moved to current premises in July 2002 • Headway House open 5 days a week in January 2007

  13. Catchment Area • Barking & Dagenham • Camden • City of London • Enfield • Hackney • Haringey • Havering • Islington • Kensington & Chelsea • Newham • Redbridge • Tower Hamlets • Waltham Forest • Westminster

  14. HEL Catchment Area ENFIELD HARINGEY WALTHAM FOREST REDBRIDGE HAVERING ISL’TON CAMDEN HACKNEY BARKING NEWHAM T. HAMLETS W’MINSTER CITY K&C

  15. Headway House – Activities, Therapies & Other Services/Support • HEL activities include arts and crafts, computer skills, creative writing, communication groups, peer support groups, cognitive exercises, daily living skills, outings and leisure activities • HEL also provides additional activities and therapies including neuro-physiotherapy, exercise therapy, music therapy, counselling, yoga therapy, and craniosacral therapy • Key Working – All attenders are allocated a Key Worker from the HEL Service Team • HEL also provides one-to-one support with day-to-day issues such as form-filling, benefits and housing • Legal surgery – Individual 1:1 support, advice and signposting and workshop sessions for groups • Advocacy support, advice and information for carers and other non - attenders • SLT Student Placement Programme

  16. Service Team Co-ordinating Team (8) Outreach Co-ordination Clinical Consultant (SALT) Neuro Physiotherapist Assistant Psychologist Music Therapist Counseller Family Support Worker Exercise Therapist Craniosacral Therapist Yoga Therapist Student Placements – SALT’s & Music Therapy Volunteers – approx 40 Managerial /Other Administrative Team Administrator Manager Chief Executive Grant Fundraiser Media Officer (Vol) Finance Administrator (Vol) Headway East London Staff Team

  17. Referral Criteria • Open referral • Attenders should be at least 18yrs of age • Priority will be given to people who have a traumatic brain injury • Referrals are not accepted from people with a progressive illness nor congenital brain injuries • Within catchment area • The attender will benefit from attendance – behave appropriately in a group setting • A trial assessment period of six weeks following commencement of placement • People with high care needs will only be offered a placement following a thorough assessment of their needs • Referrals must also be accompanied by at least one of the following: A Hospital Discharge Report or a Neuropsychology Report. We also request Social Services Needs Assessment and Care Plan if available

  18. Referral Received: Response to referral within one week Allocated to Waiting List for Initial Assessment Inappropriate referral - Referred on to other services if appropriate Initial Assessment completed Offered placement – Attender or Group Support/Volunteer Funding application for Attender Placement Funding confirmation received/Placement agreed Referred to Group Support/Volunteer Placement – No funding applied for Six week trial period commenced at Headway House – Key worker appointed Placement not appropriate - Referred on to other services if appropriate Referral to Placement

  19. Assessment - Placement Process • Waiting List for Initial Assessment currently stands at 23 people • Current level of referrals received is approx. 3 per month • 1-2 Initial Assessments completed per week by either HEL Assistant Psychologist or Clinical Consultant • Approx. 85% deemed appropriate for some level of HEL service • Length of time from assessment to funding confirmation can be as much as six months • Successful funding applications is approx. 85%

  20. Headway House - Attender Placement Funding • Over 90% of Attender placements are funded • The vast majority of funded places are through either block, cost volume or spot contract • Over 90% are funded through Social Services • Block/Cost Volume contracts/agreements are in place/process with Hackney, Camden, Redbridge and Newham • These contracts will account for over 50% of the Headway House placements

  21. HEL Service Packages • HEL offers two different service packages at the Headway House, designed to address the different scales of need of the client group • Core Membership (Attender Placement)S/T & L/T is offered on the basis that, at assessment, the person is unable to access the community at large for either social or occupational engagement • Support Group/Volunteering Membership which involves access to a weekly peer group meeting facilitated by therapy staff, serving the purpose of providing advocacy and advice as well as promoting peer-led counselling on all issues pertinent to life after brain injury. Support Group Membership is often combined, as part of the package, with a voluntary placement in the centre

  22. Core Member - Attender Service • The majority of HEL’s Core Members cannot live independently and will not be able to return to work. The aim of the centre is to acknowledge this situation and to counter it by supporting the members – even those with the most severe impairments – in taking on responsible, important work within the centre. HEL defines this work as follows: • Providing specialist peer support, befriending and advice for others with ABI • Providing training and work experience opportunities for people working towards careers in health and care professions (currently in excess of 40% of the centre’s volunteers) • Maintaining a forum for community engagement across the locality.

  23. Support Group/Volunteering Members Service • Many of the Support Group/Volunteering Members may be working towards a return to work or volunteering elsewhere, but may require extended assistance with this project • The Support Group/Volunteering placement is designed to provide the kind of support people need in regaining confidence and skills for work outside. The Support/ Volunteering Group process includes: • Regaining a working timetable and routine • Taking on significant responsibilities at the centre • Working towards achievable aims and goals • Attending weekly a peer support group • Confronting psychosocial and behavioural difficulties in a supportive environment.

  24. Goal Setting and Outcome Measurement • HEL sets goals in conjunction with attenders and group support members • Goals are measured and recorded formally on a monthly and six monthly basis • HEL’s suite of tools to measure goals and achievements includes: • Mental health/mood questionnaires (where relevant) • Quality of life questionnaires (World Health Organization Quality of Life Scale) [WHO QOL-BREF]) • Attitude questionnaire • Recording of positive practical activity and behaviour/Universal Goals • Measurement of personal goals (functional and occupational).

  25. What distinguishes HEL from other day services? • The target group of HEL is people who have acquired brain injury. In the majority of cases the injury is severe. HEL is distinct from other day services as it operates specifically for people with an ABI. HEL therefore has a number of advantages: • Attenders enjoy specific peer support from fellow attenders • A focus on the health, social and mental wellbeing of people with ABI • HEL staff acquire specialist skills in working with people with an ABI • HEL provides volunteers with invaluable experience working with this population group • Approximately 30% of HEL volunteers have an ABI. HEL is therefore providing opportunities for voluntary work among people with an ABI • Members can benefit from attending HEL before moving on to other vocationally focused organisations such as Rehab UK.

  26. Projected outcomes • The projected primary outcomes of the work of HEL are as follows: • Improved social and functional independence (improved life skills) of people with an ABI • Improved psychological wellbeing • Improved physical health • Increased motivation and initiative • Increased numbers of people with an ABI accessing day services • A reduction in health and social care expenditure.

  27. Collaborative Working Partnering and Sharing • Therapeutic • Joint working with the Adult Community Rehabilitation Team (ACRT) – Neurological Conditions, City and Hackney Primary Care Trust and Headway East London commenced in January 2007. This includes sharing training resources • Educational • HEL has an ongoing placement programme for Speech & Language Therapy(SALT) students from City University and Music Therapy Students from The Guildhall • Community • Headway East London is involved in a local community gardening project in collaboration with the Environmental Trust and The Friends of Arnold Circus

  28. Other Support Services – Non Attenders - 2007 • Advocacy, Advice and Information Approximately 30 people have accessed and received other support including telephone advice, home visits and referral to legal support in 2007 • Carers Support A monthly Carers/Family Support meeting is held in Wood Green. On average six carers attend this meeting. In 2007 approximately 14 people have attended this meeting on at least one occasion In addition approximately 30 carers of people with an ABI have accessed other support services including telephone advice, home visits and referral to legal support in 2007

  29. Looking forward • Relocation • Headway East London will be relocating to new premises Timber Wharf in Kingsland Road, Hackney • Service Expansion – Develop Satellite Headway Houses • The aim is to reach more people with additional services nearer to their own homes and communities. The first ‘satellite’ Headway House will open in March 2008 in Haringey – serving Enfield, Haringey and Northern Islington. A second ‘satellite’ Headway House is planned to open in Redbridge – serving Redbridge, Barking & Dagenham and Havering in early 2009 • Develop support & information services for carers • Set up 3 additional carer support groups acrossour catchment area in 2008/09 • Develop Outreach Services

  30. HEL Community Rehabilitation Services • Any Questions?

  31. Headway East London Headway House 45a Austin Street London E2 7NB Tel: 020 7739 7777 Fax: 020 7739 3377 Email: info@headwayeastlondon.org

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