Swindon Neurodevelopmental Pathway

1. Swindon Neurodevelopmental Pathway Designed Together Links to WSOA Priority 1.1 and Priorities 6.5/6.7 “Climbing a mountain is hard, just like achieving our dreams, but we shouldn’t let things stand in our way and in the end it is worth it” Advice from Falcon Class, Uplands School

2. Aim of this session • To share the work on re-designing the pathway for neurodevelopmental conditions assessment and diagnosis • To work together to ensure successful implementation of this pathway

3. Background

4. What we did

5. Better communication – parents didn’t know they were on a waiting list, how long it was or that their referral had been received • Desire for a single point of contact for triage • Early support whilst waiting for a diagnosis What we heard • Consistency of approach and experience across the different agencies including schools, health, social care • Some of the key themes that came out of those workshops included: • Full completion of Early Health Records before referring to a Paediatrician. Parents do not want to be solely responsible for completion of EHRs • Alternative provision/support for those who do not get a diagnosis and to clarify next steps for those that do have a diagnosis • Information sharing between providers/agencies – clarity of roles and responsibilities of each contributor to the child

6. What is a Neurodevelopmental Condition?

7. The main challenges challenges

8. Question 2: Of the numbers of children and young people over 5 years referred with query ASD, what percentage actually get a diagnosis of ASD? Answer: 30% Question 1: Of the numbers of under 5’s referred with query ASD, what percentage actually get a diagnosis of ASD? Answer: 50% Quick Quiz Fact: Since 1 April 2019, 39% of referrals received have been for ASD Fact: Since 1 April 2019, 27% referrals received are for ADHD A diagnosis of ADHD is 4-5 times more common than a diagnosis of ASD, yet the Community Paediatricians receive more referrals for ASD

9. The New Pathway

12. The new referral form • Describe what you see • What are the difficulties the parent sees? • How is this affecting the child in other environments i.e. school? • Supporting documentation • Evidence that the above symptoms are significantly impacting school functioning, such that teachers feel that this is holding a child back academically and socially • Evidence that the above symptoms are significantly impacting the home environment and any support the parents have accessed to address these behaviour traits. • Evidence that previous services have been involved, i.e. Educational Psychologist/Behaviour Support Service, with current behaviour plan and outcomes • Copies of relevant reports • Early Help Record and Plan • Core Standards documentation (schools) • School Nurse/Health Visitor report • Education Psychologist report • Speech and Language Therapy report • TAMHS/CAMHS report • SEN Plan The Referral ProcessWhat we need from referrers

13. The Referral Process • For GPs via ERS • For all other referrals, including schools, by post to: Referral Management Centre Swindon Clinical Commissioning Group The Pierre Simonet Building Latham Road SWINDON SN25 4DL • All referrals will be triaged against a list of criteria within 3 days of receipt • If accepted, the referral will then be considered by a Multi-disciplinary Team of Clinicians who will agree the next steps for the child • If rejected, you may be asked to provide more documentation to support the referral

14. Any questions?