R-5 CIL Services Effect on Community Participation

1. R-5 CIL Services Effect on Community Participation Glen W. White, Ph.D.,1 Craig Ravesloot, Ph.D.,2 Chiaki Gonda, B.A.1 University of Kansas1 University of Montana2 MICL Advisory Panel Meeting May, 2008

2. Project Purpose • The purpose is to work with national consumer organizations and consumers to identify exemplary practices of increasing community participation of people with disabilities. • To identify CIL characteristics/dimensions that place greater emphasis on community consumer participation.

3. We highlight outcomes from these boxes in the next two slides Study 1: Measuring CIL Services Activities Phase 1: NCIL and APRIL solicit CILs for exemplary practices to increase community participation COMPLETED Phase 2: CET refines variables for inclusion in a measurement instrument constructed to measure CIL service dimensions with a limited sample. PILOT TEST COMPLETED Phase 3: CET helps review CIL services that may contribute to the independence or interdependence models to determine IL service dimensions; Large scale survey is reviewed and refined with a target sample of 80 CILs. COMPLETED Phase 3: CIL Participation Services Survey sent to CIL staff and board members. 420 staff responses received and 107 board responses received. Data has been collected and entered; now in the process of analyzing these data. (64 participating CILs) DATA ANALYSES IN PROCESS

4. Ten Most Important CIL Services • Provides services to help integrate consumers into the community once emancipated from nursing homes (e.g., peer support, IL skills training) • Provides services in a way that empowers consumers to make their own choices • Works for the rights of people with all types of disabilities/chronic health concerns (e.g., sensory, mental health) • Provides services in a way that encourages consumers to advocate for their own rights • Helps consumers find housing that is accessible and affordable • Increases the community’s sensitivity concerning attitudes about people with disabilities • Provides nursing home emancipation services • Plays a role in decision and policy-making processes regarding other community services that affect consumers • Helps the community develop and maintain affordable, accessible transportation that meets consumer need • Is involved in grassroots system advocacy to make community infrastructure more accessible (e.g., public transportation, housing, education

5. CIL Participation Services Large scale study results--

6. Where we are going next… • We are engaging in Study 2 where our aim is to identify CILs that facilitate greater or lesser consumer community participation. We are preparing to survey randomly selected consumers from these CILs to determine their community participation levels. Study 2: Consumer Participation Outcomes Review results of the 64 CILs that participated in Phase III. Select the top 10 CILs with the highest and lowest staff satisfaction scores on CIL services as reported on the CIL Participation Services Survey Lowest 10 CILs Highest 10 CILs 10 consumers are randomly selected and recruited from each of the 20 CILs above to take the PARTS survey (n = 200) Data are analyzed and results written up and also packaged for use by CILs and other interested users.

7. Accomplishments in Last 6 months Worked with NCIL and APRIL to complete distribution and collection of data for the CIL Participation Service Survey (n = 527 responses) Continued participation in IL Outcomes project with Bob Michaels Participated in preparing for the RTC/MCIL State of the Science Conference on R-5

8. Project Barriers and Resolutions Barriers encountered No barriers at this time. Resolutions N/A

9. Project Outputs and Products Manuscript on Independence and Interdependence accepted by the Journal of Disability Policy Studies RTC/MCIL fact sheet updated Presentation on pilot study outcomes presented at the American Public Health Association National Conference by Dr. Ravesloot

10. For more Information… • Glen W. White – Glen@ku.edu • Craig Ravesloot - Cravesloot@ruralinstitute.umt.edu • Chiaki Gonda – Chiaki@ku.edu