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The Caregiver Journey

The Caregiver Journey. “When one is sick, two need help”. The Caregiver Journey. TODAY’S FAMILY CAREGIVERS. Provide 80% of all long term care Include 52 million caring for adults 29.2 million help ill or disabled adults aged 18+ with activities of daily living

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The Caregiver Journey

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  1. The Caregiver Journey “When one is sick, two need help”

  2. The Caregiver Journey TODAY’S FAMILY CAREGIVERS... • Provide 80% of all long term care • Include 52 million caring for adults • 29.2 million help ill or disabled adults aged 18+ with activities of daily living • 8.9 million care for someone aged 50+ with dementia • Will increase by 85% by the year 2050

  3. The Caregiver Journey From the hospital to the home... • Medical advances • Shorter hospital stays • Limited discharge planning

  4. The Caregiver Journey The cost of care... • Family caregivers provide $350 billion dollars of care a year – for “free” • Paid home healthcare -- $32 billion • Nursing home services -- $92 billion • Care for Alzheimer’s patients costs families approximately $23,436

  5. The Caregiver Journey The physical and emotional toll on caregivers... • Higher mortality rate • Depression affects 30-59% of family caregivers • Increased risk for chronic conditions such as coronary heart disease, cancer, and diabetes

  6. The Caregiver Journey When Illness and/or Disability Strike... • Acute Illness • Accidents • Chronic Illness

  7. The Caregiver Journey Impact of the Initial Diagnosis – The Acute Emotions • Shock • Denial/Minimization • Emotional Overdrive • Life is put on hold to deal with crisis

  8. The Caregiver Journey Impact of the Initial Diagnosis – The Chronic Emotions • Sadness, grief, depression • Dread • Anger, anxiety • Guilt • Loneliness, isolation

  9. The Caregiver Journey • The Heroic Stage • The Ambivalence Stage • The “New Normal” Three Stages –

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