Community Outreach and Recruitment

1. Community Outreach and Recruitment The Rockefeller University Center for Clinical and Translational Science CTSA Community Outreach Steering Subcommittee Meeting February 27, 2007 Rhonda G. Kost MD Elizabeth Londono Clinical Research Officer Outreach Specialist

2. Improving Access to Research Improving Enrollment in Rockefeller studies Reducing Health Disparities Community Engagement Institutions Community Peers Advocacy Groups Lay Community Outreach Goals….

3. RU/Aaron Diamond AIDS Research Center Outreach Institutional • Acute Infection & Early Disease Research Program Sub-sites: • Columbia University • S.U.N.Y Downstate • Clinical Scholar presentations at Medicine Rounds: • Elmhurst Hospital • Mount Sinai Medical Center Community Peers • Callen Lorde Community Health Center • Community Healthcare Network • Institute for Urban Family Health (specifically The Sidney Hillman Family Practice) • Elmhurst Hospital (municipal hospital) • Queens Hospital Center (municipal hospital) • NY Presbyterian Hospital • NY/NJ Metro HIV Grand Rounds at the New York Academy of Medicine • Physician’s Research Network’s (PRN) monthly meetings • ADARC sponsored CME symposium • Database of 900+ community physicians and other clinicians.

4. Aaron Diamond AIDS Research Center Outreach Advocacy Groups • AIDS Vaccine Advocacy Coalition • AIDS Service Center • Latino Commission on AIDS • WISH-NY Advisory Board meeting (Women’s Initiative to Stop HIV- New York). • WHCNY’s 1st Annual “Women and Girls HIV/AIDS Awareness Day” • Women’s HIV Collaborative of NY Monthly Community Roundtable • Queens HIV CARE Network Meeting • Perinatal Information Network Meeting (a program of the Bronx Health Link) • Bronx HIV CARE Network Meeting • Young Global Leaders Summit: Fighting AIDS • Voces Latinas (organization in Queens for immigrant Latinas) • NYC HIV Prevention Planning Group- Women and Children Workgroup Lay Community • ADARC’s Community Advisory Board • Community Health Workers Network • Emmanuel Baptist Church (Brooklyn) • NY Urban League-Young Professionals Group (African American young professionals group).

5. Progress: Development of Outreach Infrastructure • Personnel • Growth of a staff from 0.75 FTE to 5 member interdisciplinary team • New Outreach Advisory Subcommittee – Research Faculty, Communications, Outreach and Education staff. • Relationships • New Center relationships with diverse community groups based on broader non-protocol limited demographics, access to local communities, and established relationships of new hires to community groups. • Internal Resources • Centralized organization; initiative for common data platform to coordinate recruitment data capture • Explicit review of new protocols for potential foreign language populations to address limited utilization of foreign language capacity

6. Progress and Plans 1st year Milestones: • Team Development • Strategic Plan for Outreach and Recruitment • Expansion of Outreach Advisory Subcommittee to include key community representatives • Expansion of existing HIV Community Advisory Board to encompass broader mission as RU Community Advisory Board • Expanded involvement in more diverse community groups • Development of Internship in Outreach for public health students • Establish collaboration and support of investigators for centralized recruitment efforts • Development of central data platform to capture recruitment and outreach activities integrated into Clinical Research Information System • Expansion of procedures to promote appropriate inclusion of foreign language subjects