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Workpackage 1

Workpackage 1. Damian Jenkinson, Wp Lead Ian Swain, Atras Lead Gabrielle McHugh, Wp Research Fellow. Purpose:. Determine Current Treatment Methods and Outcome Measures Used in England for Upper Limb Rehabilitation Following Stroke Gather information on current Treatment methods

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Workpackage 1

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  1. Workpackage 1 Damian Jenkinson, Wp Lead Ian Swain, Atras Lead Gabrielle McHugh, Wp Research Fellow

  2. Purpose: • Determine Current Treatment Methods and Outcome Measures Used in England for Upper Limb Rehabilitation Following Stroke • Gather information on current • Treatment methods • Outcome measures • Indicative costs • Over the course of the first year following stroke

  3. Method: • Phase 1 – advisory group • Phase 2 – workshop • Phase 3 – pilot • Phase 4 – national survey – care providers perspective • Phase 5 – national survey - patient perspective

  4. Progress to date • Workshop 2009, Bournemouth. • Completed Survey Development Phase • Ethics Approval from Bournemouth University • Built up contact list • Completed Pilot • Survey distribution & patient recruitment ongoing

  5. How did we do it:Survey Development: • Several iterations – reviewed by workshop, advisory board • Used 17 sites representing areas of Stroke Networks • 1 site from a network area randomly selected • 10 responses – 59% response rate • Final version reviewed by Health Economist

  6. How did we do it:Survey Development: • Built contact list: • Stroke Networks – 18 of 28 networks provided contacts • Conferences – Exeter, Coventry • NHS Consultant’s Guide & Dr Foster’s • To Date: • Distributed 110 on June 30th – 30 returned to date (27%) • However, greater uptake than 27% • each survey returned represents the input of 3-5 individuals • Distributed another 54 Sept 23rd

  7. Next Phase – Patient Involvement • Rationale: • Cross validate sources of information regarding current treatment • Treatment providers may paint a picture of ‘gold standard’ rather than current practice • Patients may balance this view

  8. Patient Involvement – How? • Built a contact list through the Stroke Improvement Network, NHS Consultants Guide • Select one site from each network • Using point-of-entry (13) • 1st consultant on NHS Guide listing interest in stroke • Collaborate with 28 sites to select 6 patients • Site secures informed consent, assessment on recruitment & discharge • Randomly place into pro or retro groups (sealed envelope) • Atras follow-up with telephone interviews – 2 mths or 6 mths

  9. Patient Involvement – How? • The pro group will be contacted every 2 months for update on rehabilitation received. • The retro group will be contacted at 6 & 12 months post recruitment for update • Rationale is that the retro group are more likely to remember most relevant/beneficial rehabilitation received.

  10. Patient Involvement – Who? • AIM: We wish to have a good understanding of current treatment for the control group of trials. • Asking acute units to select individuals • Within two weeks of stroke • Most likely to have some UL impairment on discharge • Most likely to be discharged home • Carers/spouse involved

  11. Patient Involvement – Where? • Anglia • Bedford/Hertfordshire • Birmingham • Black Country • Cheshire/Merseyside • Dorset • Essex • Greater Manchester • Herefordshire • Kent • North East London • North England • North Trent • Peninsula • Shropshire/Staffordshire • South Central • South East London • South West London

  12. Coverage we are aiming for:Stroke Care Networks

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