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The Right to Independent Living and the Development of User-Led Personal Assistance

The Right to Independent Living and the Development of User-Led Personal Assistance. Ciara Brennan University of Iceland 1st Network Meeting Brussels 25/11/2011. Purpose and Objectives.

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The Right to Independent Living and the Development of User-Led Personal Assistance

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  1. The Right to Independent Living and the Development of User-Led Personal Assistance Ciara Brennan University of Iceland 1st Network Meeting Brussels 25/11/2011

  2. Purpose and Objectives • To enhance understanding of the meaning of independent living by engaging with and documenting the experiences of key stakeholders within independent living organisation • To chart the ways in which Independent living organisations in Iceland, Sweden and the UK have influenced national policy and practice in line with Article 19 of the UN Convention • Identify challenges and barriers faced by these organisations and to explore if similar challenges have been experienced or addressed in other countries • Build on existing knowledge within and between IL organisations in Iceland, Sweden and the UK Rannsóknasetur í fötlunarfræðum

  3. Research Questions • What is the meaning of independent living? • What are the challenges and barriers facing independent living organisations and have they been addressed? • What practical steps can be taken by IL organisations to bring practice more in line with Article 19?

  4. Methodology • Case studies will focus on independent living organisations in Iceland, Sweden and the UK • Desk research- policy and legislation across Europe • Qualitative methods: interviews, focus groups, participant observations • Collaborative research Maximise the involvement of independent living organisations “Nothing about us without us“ • Cross-country comparisons

  5. Independent Living Organisations • European Network on Independent living (ENIL) ENIL is a European-wide independent living organisation which focuses on the implementation of the UNCRPD and the advancement of independent living across Europe (ENIL, 2011). • JAG

  6. Anticipated Issues and Research Barriers • Language barriers • Understandings of independent living • Fieldwork across Europe • Accessibility (diverse population) • Ethics

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