Personalisation – what’s it all about?

1. Personalisation – what’s it all about? Kate Fearnley Director of Personalisation

2. Summary • About personalisation • The vision and the reality • What Alzheimer Scotland is doing • What it means on the Helpline in practice

3. “ “ assessment of need is no longer about which service a person should be referred to, but about individualising the support “ Care should be co-ordinated by means of ICPs “ Personalisation is driving the shape of all public services ” ” ” “ ” From 2008, dementia will be regarded as anational priority supporting people to self manage their conditions in the community ”

4. What do people want? • Choice and control: • where to live • who to live with (if anyone) • what to do through the day • what support is required and who/how it should provided

5. A story…

8. What’s the problem? • Lots of detailed and highly professional assessment …. • Leads to being allocated existing services • Poor fit with people’s lives • Lack of creativity and flexibility • No thought given to natural supports

9. There are challenges ahead • Growing older population • Growing number of people living with a long term condition • Reducing group of unpaid carers • Finite resources • Over focus on hours of support • Reluctance to take risks

10. About personalisation • Puts full choice and control with the person • May or may not mean managing money • May or may not mean being an employer • Attorney or guardian with financial & welfare powers can do on person’s behalf • About getting a life, not a service

11. Personalisation is a spectrum Individual budget, choose services but no need to manage money Direct payment, employ personal assistant Direct payment, buy services

12. Vision and reality Vision: • A right • Individualised budget available to anyone, option to hold the money or not • Full flexibility in how it is spent to meet outcomes for person • ‘A life not a service’

13. Reality: • Direct payments/Self-directed support • Limited access • Misunderstandings • Barriers in social work depts • Size of support packages, eligibility criteria • Limited uptake

15. Alzheimer Scotland and personalisation • Specialist dementia services important • Our home support (individual support) services offer flexible support • Can use direct payments to buy our specialist services • Can top up direct payments if council’s rate too low • Can purchase privately

16. Alzheimer Scotland personalisation pilots • East Renfrewshire & Renfrewshire post-diagnostic pilot • Supporting people after diagnosis • Future care planning • Ayrshire Self-Directed Support pilot • SDS for people facing care home

17. Personalisation and dementia research project • Evaluate the potential of personalisation for people with dementia • Identify enablers and barriers • Learn from England • Find out the experience of people using SDS • Case studies • Report in Autumn

18. The Helpline and personalisation • Encourage thinking outside the box – but without raising expectations too far • Suggest self-directed support/direct payments • Be able to explain them • Support people to request them

19. What would you do for Jim?

20. www.alzscot.org Alzheimer Scotland Making sure no-one goes through dementia alone