1 / 27

Measuring Prevalence of Disability & Severity of Limitation in a Household Survey

Measuring Prevalence of Disability & Severity of Limitation in a Household Survey. The Washington Group on Disability Statistics. An Example:. Disability prevalence in Zambia. The Disablement Process ca.1980. Disease or Impairment(s) Disability(ies) Handicap(s)

pomona
Download Presentation

Measuring Prevalence of Disability & Severity of Limitation in a Household Survey

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Measuring Prevalence of Disability & Severity of Limitation in a Household Survey The Washington Group on Disability Statistics

  2. An Example: Disability prevalence in Zambia

  3. The Disablement Process ca.1980 Disease or Impairment(s) Disability(ies) Handicap(s) disorderBody level Personal level Societal level

  4. Measuring Disability: 1 Measurement based on impairments: the ”What’s wrong with you?” approach. Questions used to identify persons with disabilities:Zambia Census 1990 1. Are you disabled in any way? Yes/No 2. What is your disability? Blind Yes/No Deaf/dumb Yes/No Crippled Yes/No Mentally retarded Yes/No Disability prevalence = 0.9%

  5. Measuring Disability: 2 Zambia Census 2000 “…disability refers to a person who is limited in the kind or amount of activities that he or she can do because of on-going difficulties due to long term physical, mental or health problems.”

  6. Measuring Disability: 2 Questions used to identify persons with disabilities:Zambia Census 2000 • Are you disabled in any way? Yes/No • What is your disability? Blind Yes/No Partially sighted Yes/No Deaf/dumb Yes/No Hard of hearing Yes/No Mentally ill Yes/No Ex-Mental Yes/No Mentally retarded Yes/No Physically handicapped Yes/No Disability prevalence = 2.7%

  7. Health Condition (disorder/disease) Participation (Restriction) Body Function & Structure (Impairment) Activities (Limitation) Personal Factors Environmental Factors The ICF Model - 2001 Source: World Health Organization, 2001

  8. Measuring Disability: 3 Because of a Health problem: • Do you have difficulty seeing even if wearing glasses? • Do you have difficulty hearing even if using a hearing aid? • Do you have difficulty walking or climbing stairs? • Do you have difficulty remembering or concentrating? • Do you have difficulty with (self-care such as) washing all over or dressing? • Using your usual (customary) language, do you have difficulty communicating (for example understanding or being understood by others)? Response categories: No - no difficulty; Yes - some difficulty; Yes - a lot of difficulty; Cannot do at all

  9. Measuring Disability: 3 The survey of Living Conditions among People with Disabilities in Zambia (2006) used the short set of 6 WG questions. Response categories: No difficulty, Some difficulty, A lot of difficulty, Unable to do it At least one of six domains have at least some difficulty • prevalence 14.5%

  10. Severity within Domains At least:

  11. Severity in ‘Disabled’ Population (%)

  12. Access to Education and Employment by Disability Status

  13. Work on Extended Measures • The WG is developing an extended set of questions that: • goes into greater depth on the same 6 domains covered by the short set of questions, and • includes additional domains of functioning such as learning, affect, pain and fatigue, • includes questions about age at onset and impact of the difficulty, • is currently being cognitively tested in preparation for subsequent field testing.

  14. Mobility Severity

  15. Anxiety Severity

  16. Anxiety probes • Please tell me which of the following statements, if any, describe your feelings. • My feelings are caused by the type and amount of work I do. • Sometimes the feelings can be so intense that my chest hurts and I have trouble breathing. • These are positive feelings that help me to accomplish goals and be productive. • The feelings sometimes interfere with my life, and I wish that I did not have them. • If I had more money or a better job, I would not have these feelings. • Everybody has these feelings; they are a part of life and are normal. • I have been told by a medical professional that I have anxiety. • How much do these feelings limit your ability to carry out daily activities? Not at all, A little, A lot, Completely

  17. Correlation between location in the anxiety frequency and intensity cross-classification and limitation October 14

  18. Pain Severity

  19. Impact as a measure of severity • Impact is often used to identify ‘normal’ limitations so they can be discounted • Impact is also used to measure the severity of the functional limitation • Two approaches are used • Ask if the functional limitation impacts participation • Ask if participation is restricted due to the functional limitation • Subjective nature of questions affects validity and reliability

  20. Two approaches to impact • How much does your pain limit your ability to carry out daily activities? • Are you limited in your daily activities because of your pain?

  21. Meeting Products & Information • Executive summary of last eight WG meetings posted on the Washington Group website along with presentations & papers from the meetings: • http://www.cdc.gov/nchs/citygroup.htm • Publication of key papers in a special issue of Research in Social Science and Disability

More Related