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Coeliac and coeliacs in Estonia

Coeliac and coeliacs in Estonia. Aive Antson Chief of Board. 1996 – Dr. Oivi Uibo and Külli Mitt invited families who had child of coeliac disease to join and organised meetings and etc 14.02.1998 – the foundation articles were certified . We are a non-profit organization.

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Coeliac and coeliacs in Estonia

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  1. Coeliac and coeliacs in Estonia Aive Antson Chief of Board

  2. 1996 – Dr. Oivi Uibo and Külli Mitt invited families who had child of coeliac disease to join and organised meetings and etc • 14.02.1998 – the foundation articles were certified. We are a non-profit organization. • Since 1998– member of the Estonian Chamber of Disabled People • Since 2006 – member of AOECS (Association of European Coeliac Societies) About history of our society

  3. The activities are based on the projects financed from the Foundation of Estonian Disabled People. • 6433.00 is budget of this year from Foundation of Estonian Disabled People. It is 21% less than last year. • 460.00 memberfees. The Estonian Coeliac Society

  4. The memberships are • 10.00 for family a year (irrespective of persons amount in family). So they have free participation in summer camp, Christmas party etc • singlemother and single pensioners pay 7.00 The Estonian Coeliac Society

  5. The Board includes 2 members: • Aive Antson • Riin Jõgi TheBoard

  6. There are 115 members in our society. • 46 coeliacs, 2 persons with gluten sensitivity and the others are members of families The Estonian Coeliac Society

  7. We can buy glutenfree products in big stores – Prisma, Selver, Stockmann • Glutenfree products are about seven times more expensive than other food • The trademarks are: Dr. Schär, Orgran, Semper etc. About for products and its prices

  8. We had an important event at September. We openedour counseling cabinet in the house of The Estonian Chamber of Disabled People • It is open on Tuesdays at 18.00 – 20.00 • We promoted it at newspapers • Our members are counseling new coeliacs The counseling cabinet

  9. So far the cabinet has been visited by 15 coeliacs (often they took family members with them) • More or less they become members with family • People get information about the cabinet: • Facebook • Homepage • Internet • Gastroenterologist • Newspaper The counseling cabinet

  10. Main problems/questions: • Finding product in stores • What to use or eat • Hiden gluten in products • Lactose tolerance • Information about society work • Appling member of the society (half of the cabinet visitors became a member) The counseling cabinet

  11. Cooperation with medical staff – gluten sensitivity • Alternative medicine (acupuncture doctors, blood group diet) diagnose gluten intolerance, but doctors say that it is not disease • The adult coeliac patients do not receive financial support for the purchase gluten-free food products Ourproblems

  12. Increase of the assortment of gluten-free products in the stores • Also support adult coeliac patients • European Licensing System – symbol • New material for coeliac • New information • Financial support system Development plan

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