100 likes | 248 Views
Coeliac disease in Croatia. Zrinjka Mišak Sanja Kolaček Referral Center for Paediatric Gastroenterology and Nutrition Children’s Hospital Zagreb, Croatia. The national picture of coeliac disease in Croatia.
E N D
Coeliac disease in Croatia Zrinjka Mišak Sanja Kolaček Referral Center for Paediatric Gastroenterology and Nutrition Children’s Hospital Zagreb, Croatia
The national picture of coeliac disease in Croatia • Incidence of clinically recognized CD pts 1:519(Matek, Kolacek et al, Coll Antropol 1999) • Screening: 1:461(Jungvirth, Kolacek et al, Acta Med Croat 2001) • Population 4 000 000 • Estimation 40 000 CD pts
The National task Force in Croatia • Zrinjka Mišak, Sanja Kolaček – paediatric gastroenterologists, representatives from the Referral Centre for Paediatric Gastroenterology and Nutrition • Ruzica Lah – the president of the National coeliac disease society • Dunja Skoko-Poljak - representative from the Ministry of Health • Society for Paediatric Gastroenterology
The diagnostic guidelines in Croatia • Children <2y of age • classic ESPGHAN criteria - 3 biopsies • Children >2y of age • revised ESPGHAN criteria - 1 biopsy
Training and dissemination in Croatia • 4 university centers • Serology testing, biopsies, HLA genotyping – easily accesible for everyone, expenses covered by obligatory health insurance Zagreb Osijek Rijeka Split
Coeliac disease societies in Croatia • 4 patient societies • one National coeliac society (member of AOECS) with 3 subsidiaries • three regional Celiac organizations that act autonomously and are not under the umbrella of the National society
CD in Croatia – after the diagnosis After the diagnosis a patient gets • written instructions on gluten free diet with some recepies • dietetic consult • 10 kg of gluten free flour per month free of charges (covered by the health insurance) • recommendation to join the patients’ society
CD in Croatia - Problems • There is no registry - the exact number of diagnosed pts unknown • Several societies - not collaborating well • Awarenes of the problem is low