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Topics for Today. Who am I What is Epidemiology? Research & Politics What is Leprosy? Leprosy Research Disability & Functioning Impact of Leprosy Surgery. Johan Velema. Nutrition & Statistics / Anthropology Bible & Mission Epidemiological Methods Heart Disease Cancer Research
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Topics for Today • Who am I • What is Epidemiology? • Research & Politics • What is Leprosy? • Leprosy Research • Disability & Functioning • Impact of Leprosy Surgery
Johan Velema • Nutrition & Statistics / Anthropology • Bible & Mission • Epidemiological Methods • Heart Disease • Cancer Research • Primary Health Care • Tropical Diseases • International Health & Development • Leprosy, Disability, CBR • Theology
Epidemiology is medicine at the population level What is Epidemiology?
The Politics of Health Research Does an American die of it?
The Politics of Pharma Research Who will buy the product?
Leprosy: The Disease • Mycobacterium Leprae • Transmission: droplets ? • Incubation: 3-25 years • Virulence: 5% • Affects skin and nerves
Disabilities • peripheral sensory loss • damage (heat / sharp / pressure / friction) • -> ulcer, inflammation, bone resorption • paralysis enhances these processes
Prevention of Disabilities • Early detection! • Teach patient how to prevent damage • Footwear • Self Care • Treat reactions / neuritis promptly
Historical Overview • 1874: Hansen discovers M Leprae • 1874: Exclusion, no Treatment • 1948: Lifelong Dapsone • 1982: Multi Drug Therapy (MDT) • 1991: Elimination Goal • 2001: Integration into General Services
Research in Leprosy • Occurrence / Control • Transmission • Chemoprophylaxis • Diagnostic Tests • Vaccine • Impact of Interventions
ICF framework • Environment factors • Love and friendship • Culture / worldview • Legislation / rights • Perceived stigma (attitudes) • Enacted stigma (behaviour) • Participation • Work/livelihoods • Relationships • Education Condition • Activities • Mobility • Communication • Learning • Personal factors • Spiritual life • Self-esteem / self-efficacy • Anticipated stigma • Internalised stigma • Experienced stigma • Body functions and structure • Vision • Hearing • Mental function
Tendon transfer surgery Introduction (2) Postoperative outcomes one year after tendon transfer surgery for ulnar nerve paralysis in leprosy patients
Postoperative Outcomes Methods (2) Impairment correction Function Postoperative outcomes one year after tendon transfer surgery for ulnar nerve paralysis in leprosy patients
SALSA • 5 Continents • 5 Years • 3 Meetings • 20 Questions • Universal score