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Ensuring Access to Data and Information - Capacity Building for Tropical Diseases

Ensuring Access to Data and Information - Capacity Building for Tropical Diseases. Lester Chitsulo Special Programme for Research and Training in Tropical Diseases (TDR) World Health Organization, Geneva, Switzerland. Permanent Access to Scientific Information in Southern Africa

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Ensuring Access to Data and Information - Capacity Building for Tropical Diseases

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  1. Ensuring Access to Data and Information-Capacity Building for Tropical Diseases Lester Chitsulo Special Programme for Research and Training in Tropical Diseases (TDR) World Health Organization, Geneva, Switzerland Permanent Access to Scientific Information in Southern Africa An International Workshop 5-7 September 2005, Pretoria, South Africa

  2. Purpose of this presentation • To give an overview of Tropical Diseases Research (TDR) programme • To discuss capacity building efforts for ensuring that data and information from research are accurate, reproducible, robust and are disseminated

  3. TDR Objectives • To support research to improve and/or develop new tools for preventing, diagnosing, treating, and controlling neglected infectious diseases • To strengthen the capacity of disease endemic countries to undertake the research required for disease control

  4. TDR Disease Portfolio • African trypanosomiasis • Chagas disease • Dengue • Leishmaniasis • Leprosy • Lymphatic filariasis • Malaria • Onchocerciasis • Schistosomiasis • Tuberculosis.

  5. TDR Structure Disease Coordinator 1 Disease Coordinator 2 Disease Coordinator 3 Director SSK PPM Disease Coordinator n SDR PDE IRM RCS LDCs “RCS-Plus”

  6. TDR Disease Strategic Emphases Matrix

  7. TDR works through Committee Structures with External Advisors Secretariat @ 20+ persons Advisors @ 200+ persons

  8. TDR Support • Collaborative research grants – tenable globally • Research capacity strengthening grants for disease endemic countries • Research training grants,including career development fellowships • Re-entry grants • Project specific training, good practices • Establishment of networks • Access to scientific literature and communications – hardware, software and training • www.who.int/tdr

  9. Capacity building approaches ` Global networks A p p r o a c h mapping grants (supply and demand) N-S & S-S partnerhips MIM/TDR Partnership grants Regional approaches Regional networks Small grants Institution Research systems R&D-driven projects Programme-based Research self-reliance Degree training Group training Re-entry Individual Capacity Building Support

  10. Training in project planning and management

  11. Capacity building in Research Ethics

  12. isa global network for developing ethical review and promote ethical and scientific values in biomedical research SIDCER FECCIS FOCUS FERCAP FLACEIS PABIN http://www.sidcer.org

  13. Quality Practice in basic biomedical research • Data from basic research must be reliable in order to ensure a solid basis for decision making • Fully described experimental conditions and properly collected and recorded data will ensure reproducibility and avoid controversies • QPBBR is concerned with the way the research work is organised, performed, reported and supervised • It is a non-regulatory quality guidance for researchers in basic biomedical research

  14. Good Laboratory Practices

  15. Good Clinical Practices Laboratory Assessment SOPs Training

  16. CLINICAL DATA MANAGEMENT • Training in clinical data management • 8 Clinical data management centres • China, Colombia, Ethiopia, India (2), Japan (2), and Thailand • To ensure production of high quality databases that meet clinical and regulatory requirements • WHO/TDR Annual Meeting on Clinical Data Management, Second Military Medical University, Shanghai, September 26-28, 2005.   • http://www.cdmtdr.org/

  17. Strengthening of DEC medical journals FAME- fame@who.int

  18. Improving access to scientific information Disease Watch

  19. Multilateral Initiative on Malaria (MIM). Communication Research grants Coordination from 2006 Reagents

  20. Biggest global malaria conference • Major participation of African scientists (> 1500) • Strong interface with malaria control • Important malaria advocacy event • TDR sponsored symposia on R & D innovation in Africa

  21. Partnerships for MSc programmes L'Universite D'Abomey-CalaviI

  22. Centers of excellence for applied genomics Latin American Course on Bioinformatics for Tropical Disease Research FIOCRUZ South African National Bioinformatics Institute

  23. Conclusion • We should build capacity that insures that data and information from tropical diseases research are accurate, reproducible and accessible. • Thank you for the opportunity to share ideas with you.

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