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DAFT DAY CONFERENCE Systemic and Intergenerational Approaches and Practice relating to Autistic Spectrum and Attention Deficit Disorders. Respect and Regard.
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DAFT DAY CONFERENCE Systemic and Intergenerational Approaches and Practice relating to Autistic Spectrum and Attention Deficit Disorders
Respect and Regard • “Remember that the person sitting opposite you is seeking happiness just like you are, and deserves to be cared for and respected, just like you do.”
Timetable • 09.30 Welcome and Opening: Lesley and Gary • 10.00 Effects of Autism on the Family: Laura • 10.30 Autism Spectrum Research and Practice: Lucia • 11.00 Coffee Break • 11.30 Autism Spectrum Research and Practice continued: Lucia • 12.30 Lunch Break • 13.15 Butterflies: Dave and Anne • 13.30 Frantic Families: Leigh and Tracey • 13.45 Lisa: ADHD and Family Life • 14.15 Gary: Top 10 Tips relating to ADHD • 14.45 Tea Break • 15.15 Steve and Gary: Neurodevelopment Service Developments • 16.00 Home Time
Laura Hatton • What effects can Autism have on the whole family • “When I am feeling unwell, perhaps with a cold and my voice sounds different, my sister can tell when I am ill. If I am lying on the settee feeling low I will suddenly see a cuddly toy whizzing round the door and usually hitting me in the face. This is usually followed by my sister clutching a blanket which she throws over my head. She often accompanies these actions with the words ‘All better now’.”
Leigh Morton & Tracey Goodrum • Frantic • Families
Gary Robinson • ADHD: Top Ten Tips • For young people, parents/carers and for helpers
1 • Step back • Never try to cuddle a hedgehog • (Without permission)
2 • Strengths and abilities • “It is easy to focus on what is wrong and to ignore what is right. To complain that roses have thorns instead of appreciating that thorns have roses!” Tish
3 • You can only change yourself • “The only way to endure an earthquake is to adjust your position! You cannot avoid daily tremors, but you can find a different place to stand!” Tish
4 • Success Stories • “When everything looks hopeless, it is the chance to grow into something better. What the caterpillar calls the ‘end of the world’ we call …a butterfly”
5 • Look after yourself • “You can long for where you could be or relax into where you are. You can live in a state of constant stress or breathe into every moment as it arises.” Tish
6 • Acceptance • “Life is about letting go, ceasing to insist on having your own way, or always having to be right. It’s about acceptance and being with what is! Anger, hurt & bitterness are like thieves in the night who steal your ability to love and care. Let go of past pain so you can find your peace!” ” Tish
7 • Take a breath • “Getting angry is like casting a stone into a wasps nest, you will not only cause an outraged buzz, but you are the one most likely to get stung.” Tish
8 • Avoid premature knowing • “Maintain a beginners mind, curious, questioning and inquisitive, so that you never stop growing.” Tish • ??? ?????
9 • Banging heads on closed doors • “If you are looking at a closed door, you will never see the open one. The way ahead may take many diversions, so be prepared for surprises...” Tish
10 • Detail and Slow down! • “Remember, the tortoise beat the hare! Don’t rush so fast that you miss the details, it’s the small things that make life worth living.” Tish
Steve Edgeley & Gary Robinson • What Families have told us they want • Joined up thinking, communication and services • Reduced waiting times and Quicker (Expert) Assessment • Family focused services, including siblings and wider family • Assessment and medication is not enough • Range and choice of services • Not to be passed on or passed about = consistency • Greater understanding and training = stop parent blaming
Steve Edgeley & Gary Robinson • Derbyshire Healthcare NHS Foundation Trust Neurodevelopment and Family Focused Initiatives • Thinking Families • Safeguarding • Multi Systemic Therapy • Developing Systemic Training & Posts
Steve Edgeley & Gary Robinson • Derbyshire Healthcare NHS Foundation Trust Neurodevelopment and Family Focused Initiatives • Neurodevelopmental Approach and Pathway • Piloting ADHD Services for Adults in Chesterfield • Supporting Butterflies and Service User Involvement • Rapid Group work for young people • Parent Support Groups • Family Focused assessment and support • Multi-agency, multi-professional working
Discussion, Questions and Feedback • In groups of three • Complete and discuss feedback forms • What have you liked and disliked? • What will you take away from today? • Feedback/suggestions for DAFT/Trust/Parents?
Please contact us Gary Robinson Principal Family Therapist Rivermead Goods Road Belper Derbyshire DE56 1UU Tel: 01773 880554 Fax: 01773 880921 gary.robinson@derbyshcft.nhs.uk