Improving Outcomes Guidance (IOG) in Cancer and the Younger Person

1. Selena Blake - Programme ManagerTeenage and Young Adults Cancer ServicesSouth West Specialised Commissioning Group Improving Outcomes Guidance (IOG) in Cancer and the Younger Person South West Specialised Commissioning Group

2. Today • Background • The IOG and the Younger Person • What has happened so far • Next Steps South West Specialised Commissioning Group

3. Background • Epidemiology • Impact; late effects and survival • Experiences • Challenges South West Specialised Commissioning Group

4. Improving Outcomes Guidance (1) • NICE CYPIOG August 2005 • An IOG defined by age and not tumour type • Opportunity to not only improve clinical outcomes, but also the experience of young people as patients AND their families South West Specialised Commissioning Group

5. Improving Outcomes Guidance (2) • An appropriate balance of service provision and resource allocation • Safe and effective services as locally as possible, NOT local services as safely as possible • Clear organisational structures • Identified PTCs providing range of sustainable services with defined staffing South West Specialised Commissioning Group

6. Improving Outcomes Guidance (3) • Shared care with defined agreed responsibility • Care delivered by Multidisciplinary Teams (MDTs) • Skilled, professional key workers identified to coordinate care; provide information; assess needs • Young people under 19yrs in age-appropriate facilities, with those 19yrs and over to have unhindered access South West Specialised Commissioning Group

7. Improving Outcomes Guidance (4) • All young people must have access to tumour-specific expertise • All young people with cancer to be offered entry to clinical trials, treatment and care via agreed protocols and pathways • Registration of cancer in 15 – 24yr olds • Full implementation by 2010/2011 South West Specialised Commissioning Group

8. What has happened so far? (1) • Baseline assessment in January 2007 showed:- variation in patients being treated at PTCs- inequalities in access to shared care- inequalities in access to IOG recommended services- TYA MDTs not generally established- transitional arrangements weak- workforce gaps South West Specialised Commissioning Group

9. What has happened so far? (2) • 8 x Programme Managers for 2yrs (March 2008) • Advisory Board > SCGs and Cancer Networks • Workload data for the SW SCG area produced • Core principles for commissioners working with providers regarding development of:- Services- PTCs- TYA MDTs- Shared Care Arrangements- Age Range- Place of Care South West Specialised Commissioning Group

10. Next Steps (1)? • National co-ordination, local development:- TYA centres with age appropriate facilities- TYA Shared Care facilities- TYA MDT- Supportive and palliative care for TYAs- TYA Workforce • National Framework to inform Services; PTCs; MDT and Shared Care • Cancer network young people’s working groups:- gap analysis- care pathways / shared care arrangements South West Specialised Commissioning Group

11. Next Steps (2)? • Regional strategic working group – advisory group to SW SCG • Stakeholder event - 16th June 2008 (flyer) • Develop and submit Implementation Summary 30th September 2008 to NCAT • Develop Project Plan for implementation by 2011 South West Specialised Commissioning Group

12. Summary (1) • Clear need and remit for separating TYA services as distinct from paediatric and adult • Dedicated implementation resource • Framework for development • Opportunity to improve outcomes South West Specialised Commissioning Group

13. Summary (2) • Philosophy of (individualised) patient care • Physical environment • Clinical practice / expertise - planning • Resourcing • Workforce • Any questions? • sblake@nhs.netor 07770702028 South West Specialised Commissioning Group