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Genetic Law

Genetic Law. By: Anya Kim, Tess Davis, Maddie Tate. Genetic Information Discrimination. Title II of GINA Illegal to discriminate on… Illegal when applies to… Cannot retaliate in any way if charge is filed Exceptions Cannot disclose others’ information Must stay confidential.

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Genetic Law

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  1. Genetic Law By: Anya Kim, Tess Davis, Maddie Tate

  2. Genetic Information Discrimination • Title II of GINA • Illegal to discriminate on… • Illegal when applies to… • Cannot retaliate in any way if charge is filed • Exceptions • Cannot disclose others’ information • Must stay confidential

  3. Genetic Privacy Act California is currently debating a bill that would protect its citizens from DNA testing without their consent. Pros • Protects privacy and sensitive information • Diseases • Classified family information • People could not know your genes without permission Cons • Research would suffer • Before they store huge databases of DNA • $594,000 • More of a hassle to get genetic testing done

  4. Cloning • Dickey-Wicker Amendment(1996)-illegal to use federal funds to support research “...in which human embryos are created, destroyed, discarded, or knowingly be subjected to risk of injury or death…” • No legislation that prohibits cloning for either therapeutic or reproductive purposes. • Human embryos are “any organism, not protected as a human subject under 45 CFR 46.

  5. Cloning • States that ban cloning both therapeutic and reproductive: • Arkansas • Indiana • Iowa • Michigan • N. Dakota • S. Dakota • Virginia • Maryland bans specifically reproductive cloning. • States that ban public monies for the use of cloning: • Arizona • Missouri • States that allow therapeutic cloning: • California • Missouri • New Jersey • Rhode Island • Connecticut

  6. Genetic Laws Concerning Children • “Wrongful Birth” Cases • Genetics used to determine likelihood of inherited diseases • Down Syndrome • Tay Sachs • Cystic Fibrosis • asdf • Parents suing over mistakes in predictions • Argue for money to pay for the cost of the disability • Didn’t create the underlying genetic problem • Ethical Question: Price on life? • 30 states have ruled in favor of the “wrongful life” cases • Malpractice or Negligence

  7. Human Genes Cannot Be Patented • June 12, 2013 - Supreme Court ruling • product of nature • major barrier • beyond domain of patent protection • Myriad Genetics Inc. • overturned three decades of patent awards

  8. Who Regulates? • Federal Food, Drug, and Cosmetic Act and the Public Health Service Act provide sufficient authority for federal health agencies to regulate research on human genetic modification. • Agencies: • FDA • Recombinant DNA Advisory Committee(RAC) • National Institutes of Health(NIH) • The Center for Biologics Evaluation and Research(CBER) • What they regulate: • Human germline genetic modification • Gene Therapy • Human gene therapy products • NIH has set guidelines for agencies that receive federal money.

  9. Works Cited • www.eeoc.gov/laws/types/genetic.cfm • www.theguardian.com/law/2013/jun/13/supreme-court-genes-patent-dna • http://www.dnapolicy.org/resources/Overviewofcourtdecisions_Crockin.pdf • http://www.google.com/url?sa=i&rct=j&q=genetic%20law%20on%20children&source=images&cd=&cad=rja&docid=U-csyeVyfFrnBM&tbnid=R4f51GozxHgRGM:&ved=0CAQQjB0&url=http%3A%2F%2Fuk.onlinenigeria.com%2Fhealth%2F68247-dawn-of-the-gm-baby-technique-that-gives-children-three-parents-may-only-be-a-year-away.html&ei=CxkmUt3kMYGSqQGdwIF4&psig=AFQjCNHaHcdsl4X4zqP9kju2RqDdXDgs7w&ust=1378314891233920 • http://www.sampleforms.org/wp-content/uploads/2010/06/Medical-History-Form.png • http://www.google.com/url?sa=i&rct=j&q=genetic%20law&source=images&cd=&cad=rja&docid=SYOBb8yiggqHRM&tbnid=f8KoSzGOYziEPM:&ved=0CAQQjB0&url=http%3A%2F%2Fwww.councilforresponsiblegenetics.org%2Fblog%2Fpost%2FSupreme-Court-will-review-Md-DNA-law.aspx&ei=RRkmUsDWKcanrAG414CoDA&psig=AFQjCNG0kSedvxDOOr4pK2i_-bUAIYHUNg&ust=1378314939787148 • http://images.sciencedaily.com/2010/06/100607101652-large.jpg • http://www.nature.com/news/california-considers-dna-privacy-law-1.10677 • http://massacademy.files.wordpress.com/2011/05/bud1.jpg?w=300&h=300 • http://t0.gstatic.com/images?q=tbn:ANd9GcQL-qL_2SfmaXXIHrk_PKlLVAy9E3wBj1rCRcbUqDP0vpT97ECX:www.skewsme.com/cloning/cloned_homers_b.jpg • http://www.dnapolicy.org/policy.international.php?laws_id=36&action=detail • http://www.dnapolicy.org/policy.international.php?action=detail&laws_id=49 • http://research.dental.ufl.edu/files/2012/10/nih-logo-blue.gif • https://www.presidentschallenge.org/CBER/MPC%20CBER%20Logo.jpg

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