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Meeting with Industry Partners July 16, 2009. NASTAD’s 2009 Priorities. Overview. About NASTAD Care and Treatment Prevention and Surveillance Viral Hepatitis Racial and Ethnic Health Disparities Leadership Development. NASTAD Members. NASTAD members are responsible for:
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Meeting with Industry PartnersJuly 16, 2009 NASTAD’s 2009 Priorities
Overview • About NASTAD • Care and Treatment • Prevention and Surveillance • Viral Hepatitis • Racial and Ethnic Health Disparities • Leadership Development
NASTAD Members • NASTAD members are responsible for: • Coordination of HIV/AIDS programs in states, regardless of authority of grants • HIV/AIDS health care and supportive services, including Ryan White Part B and ADAP • HIV prevention, education and surveillance • Adult viral hepatitis • STDs, TB and other communicable diseases • Family planning • Other public health issues, including H1N1
NASTAD Programs • Domestic • Care and Treatment • ADAP Monitoring and Technical Assistance • Prevention and Surveillance • Racial and Ethnic Health Disparities • Viral Hepatitis • Global Technical Assistance • Government Relations/Policy
Federal Advocacy and Policy • Provide policy expertise on Ryan White Program and HIV and viral hepatitis prevention programs • Relied on for advocacy materials including ADAP fact sheets and charts, Blueprint for Ending the HIV/AIDS Epidemic Through the Power of Prevention andprevention policy agenda • Develop annual need numbers for Ryan White Part B Base, ADAP and CDC HIV and viral hepatitis prevention programs
Federal Advocacy and Policy • Monitor all federal funding for HIV/AIDS programs • Monitor state funding and budget crises • Build strong relationships with Hill champions and federal agencies • Work with governors offices, pharmaceutical and diagnostics industry, HIV and viral hepatitis community, and public health organizations to advance common goals • Provide significant leadership and policy capacity in numerous coalitions
Federal Advocacy and Policy • Co-Chair AIDS in America • Sit on Convening Group of Federal AIDS Policy Partnership (FAPP) • Co-Chair FAPP Ryan White Working Group • Co-Chair HIV Health Care Access Working Group • Run the ADAP Advocacy Coalition • Run the Hepatitis C Appropriations Partnership • Chair the National Viral Hepatitis Roundtable • Active in the AIDS Budget and Appropriation Coalition • Participate in the ASTHO Affiliate Council • Participate in the 340B Coalition
Care and Treatment • Ryan White Implementation • Client level data • Part B Supplemental • Maintenance of Effort and State Match • Focused TA on implementation of HRSA/HAB clinical performance measures • ADAP TA Meeting • Only meeting of its kind for ADAP Coordinators • Industry partnership is essential; no federal funding • Seeking input on ADAP TA meeting in years when RW All Grantee Meeting is held (2010)
Care and Treatment • ADAP TA and Monitoring Project • Provides critical TA to ADAPs; HRSA cooperative agreement and industry funding • ADAP Clinical Advisory Work Group • ADAP clinical newsletter (quarterly) • HIV/AIDS Medical Directors listserv • TA products • ADAP Emergency Preparedness Guide • Coordination of Benefits ADAP TA Brief • Fact sheet on Stimulus COBRA benefit • TA webinars • Insurance purchasing • Waiting list management • Medicare Part D and Medicaid wrap-around
Care and Treatment • National ADAP Monitoring Project and Report • Partnership with Kaiser Family Foundation (KFF) and many industry members • Produces annual report and bi-monthly ADAP Watch reports • Partnership with KFF is shifting to “modules” of various state HIV/AIDS issues, including ADAP • Seeking support for continuation of National ADAP Monitoring Report
Care and Treatment • ADAP Crisis Task Force • Appreciate willingness of industry partners to voluntarily come to the table • Share successes and industry partnership without letting Congress off the hook for funding • TA to states to ensure proper implementation
Prevention and Surveillance • Peer - based TA, assessments and reports • Kaiser Family Foundation – National HIV Prevention Program Inventory • TA meeting on reaching gay men through the Internet • TA meeting on expanding syringe access • TA on using new media • Preparation for new biomedical prevention tools • Collaboration with CDC on “Heightened National Response to HIV Crisis Among African Americans” and Act Against AIDS • Focus on HIV surveillance in collaboration with Council of State and Territorial Epidemiologists (CSTE) • HIV/STD Prevention for Youth • National Vaccine Awareness Day activities • Monthly Prevention Bulletin
Prevention and Surveillance • Assisting states with implementing CDC 2006 testing recommendations and Expanded Testing Initiative • Ongoing assessment of health department progress • Monitoring state legislation and regulation • “HIV Testing in Emergency Departments: A Primer on Issues and Strategies for Health Departments” • Report on year one of Expanded Testing Initiative • Rapid testing implementation report • Original co-sponsor of National HIV Testing Day • Governors’ HIV Testing Initiative • Linkages to care
Viral Hepatitis • Focus on integration with HIV programs including hepatitis A, B, C and co-infection • Support adult viral hepatitis prevention coordinators • CDC funding provides little more than a salary • No funds for services or treatment • Collaborating with Perinatal hepatitis B Coordinators • CDC Cooperative Agreement focused on networking, partnership, and information dissemination • NASTAD National Viral Hepatitis TA Meeting
Viral Hepatitis • No funding for education, testing, referral into care • No funding for chronic surveillance • No dedicated funding for adult vaccine • CDC directed $16 million in unspent 317 vaccine program funds for hep B vaccine, not for infrastructure to deliver vaccine • No dedicated program to provide care, will be aging into government programs • Seeking stronger collaboration with industry and providers in advocacy
Racial and Ethnic Health Disparities • Overarching focus for NASTAD members and staff • Work woven into all program and policy areas • African American and Latino Advisory Committees • API and Native American projects • Research and TA on needs of Black gay men • Regional TA meetings - corrections and African American women • U.S./Mexico border epi project • Population specific reports and recommendations
Leadership Development • Support from Johnson and Johnson for program targeting health department staff • Completed needs assessment phase; developed and conducted first program for new AIDS directors in 2009 • Mentoring and other training programs in process • Seeking funding to expand program, including workforce development • Focus on leadership development among young people and health department minority staff
Contact Information National Alliance of State & Territorial AIDS Directors 202.434.8090 www.NASTAD.org Julie Scofield Murray Penner Executive Director Deputy Executive Director, Domestic Programs jscofield@nastad.orgmpenner@nastad.org Laura Hanen Dave Kern Director, Government Relations Director, Strategic Initiatives lhanen@nastad.orgdkern@nastad.org Ann Lefert Beth Crutsinger-Perry Associate Director, Government Relations Associate Director, Care and Treatment alefert@nastad.orgbcrutsinger-perry@nastad.org Terrance Moore Chris Taylor Senior Manager, Racial and Ethnic Health Disparities Senior Program Manager, Viral Hepatitis tmoore@nastad.orgctaylor@nastad.org