A Study of the Efficacy of the Parents Empowering Parents Program

1. A Study of theEfficacy of the Parents EmpoweringParents Program Sue duTreil, PhD, LCSW Louisiana Center for Bleeding And Clotting Disorders Tulane University School of Medicine

2. Introduction The PEP program was designed to give parents tools to improve the lives of their children with bleeding disorders.

3. Topics Covered in PEP • Introduction to the basics of bleeding disorders • Child development • Compassionate discipline • Fine-tuning behavior management • Understanding your unique world view • How thoughts and feelings affect parenting • Building self esteem • Understanding the process of communication • Refining communication skills • Conflict management • Parenting styles

4. Parenting Techniques Discussed in PEP • Spanking • Giving attention • Praising • Time out • Natural consequences • Removing privileges • Yelling • Being consistent • Discussion • Punishment • Ignoring • Grounding • Giving-in • Providing structure • Offering material rewards • Distracting • Teaching • Suggesting alternatives • Supervising • Making prior agreements • Keeping my word • Removing temptation • Preparing in advance • Setting limits • Spending time together • Giving choices

5. Objective To assess the content and outcomes of the PEP Program.

6. Study Design The design of this study is a descriptive, cross sectional study in that it is an exercise in gathering information at a single point in time.

7. Demographics

8. Demographics

9. Demographics Relationship to Child with Bleeding Disorder If you are not a parent, what is your relationship to the child with the bleeding disorder? • Grandmother………….. 2 • Aunt……………………...2 • Self……………………….1 • Mother/Grandmother….1 • Stepfather……………….1 • Stepmother……………..2

10. Demographics

11. Demographics

12. Methods • IRB approval was obtained by all participating HTC’s. • A survey was used to assess use of parenting techniques by parents of children with bleeding disorders whether they attended PEP or not.

13. Analysis

14. Analysis • Frequency distributions were used to determine the parent’s perception of the helpfulness and value of PEP, and changes in relationships that have occurred after attending PEP. • Chi-square tests were used to identify the parenting technique usage on which the groups differ. • Logistic regression analyses were used to compare the Don’t Need group to the other groups and to compare the Attended group to the other groups for all parenting technique usage differences that were significant (P ≤ 0.05) or borderline significant (P ≤ 0.06).

16. Yelling

17. Spanking

18. Slapping

19. Giving -In

20. Additional Results for Parents Who Attended PEP

21. Changes in Spouse/Partner Relationship

22. Value of the PEP Program (n=62)

23. Effects of PEP Concepts on Important Relationships

24. If you want your children to improve, let them overhear the nice things you say about them to others.  • ~Haim Ginott • When my kids become wild and unruly, I use a nice, safe playpen.  When they're finished, I climb out.  • ~Erma Bombeck • Always kiss your children goodnight - even if they're already asleep.  • ~H. Jackson Brown, Jr.

25. My Great Nieces and Nephew: Megan, Hannah-Rose, and Ryan