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Data Commons Progress Report on a Data Exchange Network. Medbiquitous Annual Meeting April 2013. Dana Bostrom Len Armstrong Executive Director Director, Information Technology bostrom@mydatacommons.org larmstrong@mydatacommons.org T: @ mydatacommons w : www.mydatacommons.org.
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Data CommonsProgress Report on a Data Exchange Network Medbiquitous Annual Meeting April 2013 Dana Bostrom Len Armstrong Executive Director Director, Information Technology bostrom@mydatacommons.orglarmstrong@mydatacommons.org T: @mydatacommons w: www.mydatacommons.org
Today’s agenda • Vision of Data Commons • Organizational Update • How to. . • Be a Data Contributor • Request Data • Technical overview
Vision of Data Commons • One Stop Shop. Allows organizations and individuals to request data for purposes such as: • Receiving official documents • Confirming status of medical professionals • Longitudinal research • Maximize Privacy. • Minimizes storage of data and transmission of identifying details
Organizational Update Data Commons, LLC has formed and currently has these parties governing the entity: • American Board of Family Medicine • American Board of Pediatrics • Association of American Medical Colleges • Educational Commission for Foreign Medical Graduates • Federation of State Medical Boards • National Board of Medical Examiners
More New. . . • Data Contributors: We are matching data from new organizations into the Data Commons ID system • Data Users: We are accepting requests from organizations who want to “use” the Data Commons infrastructure to send & receive data • Timeline: • We expect to be able to serve requests for data through APIs in the 3rd quarter of 2013 • A “Research” app (for longitudinal research) will launch in 2014
How to. . . be a Data Contributor • Get your data matched & prepare to make it available • Match your identity data to the Data Commons infrastructure • Decide what data to make available to the Data Commons • Link your data to Data Commons • On-going… • Match new identities as they come in to your organization’s systems • Identify data prices and rules for availability • As application are approved, grant permissions for requesting apps to use your data
How to . . . .Request Data Data Confirmation • What: An organization requests that Data Commons confirm that information submitted by an individual is true • Who works with Data Commons: A software “app” eg journal, social networking software, etc. • How: Through an API Data Verification • What: An individual requests or authorizes another to request official documents / proof of status, certification, license, scores, etc. • Who works with Data Commons: A software “app” eg a CVO • How: Through an API
How to. . .request research data • Data Commons is building a “research app” which will allow individuals to request longitudinal data sets for policy, academic, etc. research • App is expected in early 2014 • If you want to be involved now, please let us know – we can use your thoughts as we build it!
Target Architecture, Logical View Identity Management The Hub “Director”
How the Identity Matching Service (IDMS) works • Set up: Participating organizations provide identifying data about the population of interest, including the organization’s “native” ID (e.g., USMLE ID) so they can be added to IDMS • Currently matching 4 new partner organizations • On-going: As new persons are added or existing persons updated, the organization submits additional identifying data records to IDMS • On-demand: As data requests are processed, the IDMS translates “native” ID of the requestor to the “native” ID of the data contributor • Example: • NBME requests data about a student identified by a USMLE ID • IDMS translates the request to identify the student by an AAMC ID • IDMS forwards the translated request to AAMC
For More Business Dana Bostrom 202-741-6450 bostrom@mydatacommons.org Technical Leonard Armstrong 215-590-9623 larmstrong@mydatacommons.org T: @mydatacommons www.mydatacommons.org