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Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for Pilgrims Friend Society. Pilgrims Friend Society is 204 years old Exists solely to serve older Christians Began by providing pensions – long before the Welfare State (1807)
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Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for Pilgrims Friend Society
Pilgrims Friend Society is 204 years old Exists solely to serve older Christians Began by providing pensions – long before the Welfare State (1807) Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.
Person Centred Care Caring for the person with dementia ‘It is important to see the person first rather than the dementia’ – Tom Kirkwood Each human face is unique, and so is each human brain. Each person with Dementia is unique, with very different experiences of life, with their own needs and feelings, likes and dislikes.
Person Centred Care Caring for the person with dementia • Discover the person • Give respect • Focus on their abilities • Encourage expressions • Create community and trust • Remember:- • The person is still the same. • Focus on the person not the dementia. • Good care depends on understanding and knowing. • Carers relationship is therapeutic in itself.
Caring for the care-giver Despite our welfare system, the major role in care-giving is still taken on by family members, very often an elderly spouse. The person with dementia is not on this journey alone, the caregiver is walking beside them.
Caring for the care-giver Caring for a person with dementia is different to other types of care giving, and is one of the most difficult situations encountered by caregivers. • Usually 24/7 • May involve 3 to 15 years of caring • 2/3rds of people with dementia are cared for in their • own homes by a relative • At present there are 540,000 care givers • A new case is diagnosed every 3.2 minutes
Caring for the care-giver Care givers experience • Continuing losses • Anticipatory grief • Role captivity • Emotional reactions
Caring for the care-giver Importance of relationships • Avoid isolation • Share the diagnoses • Let the church family know • Prepare for the future • Anticipate your feelings
Caring for the care-giver Care givers needs • Empathy • Re-assurance • Time for self • Share the responsibility • Assessment of needs • Talk to others • Human contact • Spiritual encouragement
The Spiritual Journey Christine Bryden ‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit. I’ve begun to realise what really remains through this journey is what is really important. I think that if society could appreciate this, then people with dementia would be treasured and accepted’.
The Spiritual Journey When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the LORD your God, the Holy One of Israel, your Saviour. Isaiah 43:2-3
Blessed are they who understand My faltering steps and shaking hand. Blessed, they who know my ears today Must strain to catch the words they say. Blessed are they with a cheery smile Who stop to chat for a while. Blessed are they who never say ‘You’ve told us that story twice today’. Blessed are they who make it known That I am loved, respected and not alone.