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David Supple Chair of UBIOPRED PIP. U- biopred. IMI- funded research project on asthma C ollect information and samples from adults and children L earn more about different types of asthma Better diagnosis and treatment for each person. PATIENT INVOLVEMENT.
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David Supple Chair of UBIOPRED PIP
U-biopred • IMI- funded research project on asthma • Collect information and samples from adults and children • Learn more about different types of asthma • Better diagnosis and treatment for each person
PATIENTINVOLVEMENT What is a Patient Input Platform? • People living with a condition, caregivers and patient organisations U-BIOPRED PIP • 11 patients from 5 EU countries • Supported by Asthma UK, Longfonds, EFA, LIAF and ELF • PIP members in the Ethics Board, Safety Monitoring Board and Scientific Advisory Board
Pip: LESSONS LEARNT • Involve early • Involve deeply • Give patients feedback on project progress • Include patients in dissemination • Help patients convey their own story
Pip BOOKLET www.europeanlung.org/en/projects-and-research/projects/u-biopred/home Available in English, French, Spain, Italian, Portuguese, German, Greek, Russian, Polish, Czech/Slovak