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U-BIOPRED Patient Involvement: Enhancing Asthma Understanding and Treatment

Dive into the U-BIOPRED research project on asthma, involving patients in a Patient Input Platform for improved diagnosis and personalized treatment. Learn how patients contribute, provide feedback, and share their stories throughout the project.

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U-BIOPRED Patient Involvement: Enhancing Asthma Understanding and Treatment

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  1. David Supple Chair of UBIOPRED PIP

  2. U-biopred • IMI- funded research project on asthma • Collect information and samples from adults and children • Learn more about different types of asthma • Better diagnosis and treatment for each person

  3. PATIENTINVOLVEMENT What is a Patient Input Platform? • People living with a condition, caregivers and patient organisations U-BIOPRED PIP • 11 patients from 5 EU countries • Supported by Asthma UK, Longfonds, EFA, LIAF and ELF • PIP members in the Ethics Board, Safety Monitoring Board and Scientific Advisory Board

  4. Pip: LESSONS LEARNT • Involve early • Involve deeply • Give patients feedback on project progress • Include patients in dissemination • Help patients convey their own story

  5. Pip BOOKLET www.europeanlung.org/en/projects-and-research/projects/u-biopred/home Available in English, French, Spain, Italian, Portuguese, German, Greek, Russian, Polish, Czech/Slovak

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