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Demographics

Birth Defects and Developmental Disabilities Prevention State and Local Collaborative Efforts in Illinois. Dr. Jane Fornoff lllinois Department of Public Health Adverse Pregnancy Outcome Reporting System (APORS) Shelley Tulipana Sangamon County Department of Public Health. Illinois

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Demographics

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  1. Birth Defects and Developmental Disabilities PreventionState and Local Collaborative Efforts in Illinois

  2. Dr. Jane Fornofflllinois Department of Public HealthAdverse Pregnancy Outcome Reporting System(APORS) Shelley Tulipana Sangamon County Department of Public Health

  3. Illinois 180,000 births/year 12 million residents 94 local health departments Demographics

  4. Illinois 180,000 births/year 12 million residents 94 local health departments Sangamon County 2,500 births/year 200,000 residents 877 square miles Demographics

  5. Areas of Collaboration Adverse Pregnancy Outcome Reporting System (APORS) & local health departments • High-risk infant follow-up program • Education • Neural tube defect prevention

  6. Adverse Pregnancy Outcome Reporting System • Set up statewide in 1987 by Illinois Department of Public Health • Infant Mortality Reduction Initiative • Designed both as a surveillance system and a means of providing care to families

  7. Mechanism • Hospitals complete a form when the infant is discharged from the hospital • Very-low birth weight • Birth defect • Prenatal drug exposure • Other adverse outcomes • One copy to the local health department • One copy to the Illinois Department of Public Health

  8. Funding • Surveillance component funded by CDC and GRF • Home visits funded through Illinois Department of Human Services

  9. High Risk Infant Follow-up • Parental consent is required • Contact in 7 days • Home visits at 2, 4, 6, 12, 18 and 24 months • Other requirements

  10. Referrals • Early Intervention • Physicians • Women, Infants and Children (WIC) • Social Service Agencies

  11. State-wide Outcomes • Children born in 2002 or 2003 and reported to IDPH • 60.9% high risk infants received at least 1 home visit • 14.4% received other services from a local health department

  12. Among those with a visit • 60% received the first 2, 4, 6 and 12 month visits • 27% received the 18 and 24 month visits as well • 62% received 6 or more visits

  13. Education • APORS maintains a supply of brochures

  14. Birth Defect Prevention • Many neural tube defects (NTDs) are easily preventable • Mothers with one NTD-affected pregnancy are at high risk for another

  15. Targeting Educational Efforts

  16. Challenges • Reorganization • Minor birth defects • Hospitals knowing what to report • Late hospital reporting

  17. Successes • 10,000 children born in 2002 or 2003 received at least one home visit • Infant mortality 1986: 12.0/1,000 live births 2004: 7.3/1,000 live births • Integrated Local Health Department Services Early prenatal care Well Child Clinics Immunizations Folic acid education

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