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WHO Public Health approach in the planning and implementation of Palliative care: Experience and evidence from Catalonia Xavier Gomez-Batiste Pal Care , Institut Catala d’Oncologia Socio-Health, Catalan Department of Health Spanish Society for Pall care (SECPAL). 6.7 milion habitants > 16% > 65
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WHO Public Health approach in the planning and implementation of Palliative care: Experience and evidence from CataloniaXavier Gomez-BatistePal Care , Institut Catala d’OncologiaSocio-Health, Catalan Department of HealthSpanish Society for Pall care (SECPAL)
6.7 milion habitants > 16% > 65 1 million > 65 ys 100.000 elderly with pluripathology and dependency Dementia: 90.000 Cancer mortality: 13.000 Aids: 300 CATALONIA
Catalonia: Public Health Care system (universal coverage, free access) Hospitals: 14.000 beds Regional Cancer Institute Sociohealth Centers: 5.000 Residential: 45.000 Primary care network
Background • British experience on Hospices: model of care and internal organisation, but outside the NHS • The Public Health approach: E. Wilkes (1985) + Jan Stjernsward (WHO) + V Ventafridda
PCPC: global results 2004 • Nº total resources: 162 • Interventions/year: > 20.000 • Coverage cancer: 75% • Cancer vs noncancer: 60/40% • Coverage, geographical: 100% • Total beds: 550 • Beds /milion hab: 85 • Full time doctors: 140
Units 2001: placement Hosp Univ: 6 Hosp Gen: 4 ICO: 1 CSS: 38 MEP: 11 • Nº total: 60 • Beds: 550 (9.5/UCP) • Length stay: 22.8 days • Mortality: 69.7% • Discharges home: 23.0%
Home Care Support Teams • Nº total: 62 • Nº new patients/year: 250 • Cancer (46%), geriatrics (46%), chronic • Prevalents: 30-40 • Time intervention: 6 weeks • Place of death: 61% home, 19% CSS, 12% HA • Nº total professionals (2003): 318 • Cost: savings of 1.000 euros/patient
CP: levels of complexity Complete teams Units Reference: complexity+ training+ research Basic Support Teams General Measures in Conventional Services
Complex metropolitan systems (300-500.000 hab): levels, coordination
ICO: Palliative Care Service • Unit 16 beds • Outpat’s/DC • Support team CSUB ICO PADES + UCPSS
PCS at ICO: basic outputs • New patients/year: 1.000 (Cancer 100%) • Median survival 1st visit: 3.5 months • Mean age: 60 years • Length of stay (Unit) : 9 days • Mortality (Unit): 50% • Cost: 30% of Medical Oncology
PCS at ICO: other aspects • Reference for training (Master, Intermediate, Basic): more than 5.000 profesionals trained • Research: CATPAL cooperative group (more than 17 studies) • Quality improvement: EFQM model
ICO 1998: the “ping-pong” model CIR HMT ONC ORL PAIN PAL CARE RDT URG Cuidados Paliativos
ICO 2005: interphase Oncology-Pal care UFP PACMAC UFM Palliative Care Service: clinic, unit, support team Case management Continuing care Emergencies Coordination UFORL UFGINE USAC “From competition to cooperation”
Death Diagnosys Bereavement Specific Treatment Suportive care Palliative care Terminal care Complexity vs prognosis Definitions and trams
PVAA 166,8 million € 3% of total CHS budget PCPC: 23,7 million € 0,43 % total CHS budget
Legislation and standards • Decret Catalunya 1990 • Recomendaciones de la SECPAL, Ministerio de Sanidad (1993) • Estàndards de cures pal.liatives, SCS, SCBCP (1993) • Decreto/orden 1993 (Opioides) Ministerio • Plan Nacional de Cuidados Paliativos (2001) • Guía de criterios de calidad en cuidados paliativos: SECPAL, Ministerio Sanidad (2002) • Indicadores de calidad en cuidados paliativos: SECPAL, Ministerio de Sanidad
Spain 2002 by Regions Fuente: Directorio SECPAL
Spain 1984-2002 Fuente: Directorio SECPAL
COMPARISON 1992-2002: USE/COST OF RESOURCES INGR: % malalts / ESTMITJ: dies / URGENC: %malalts COST: euros x 100 (XGB et al, 2002)
TESISTAULESTEXTCAPVI1 Hospital Costs: 1992 vs 2001(Cost / process-patient / 6 weeks at 2001 prices) • 1992: 4.987 euros • 2001: 1.701 euros • Difference: 3.286 euros / patient
National Policy: Elements • Evaluation of needs • Defined targets, aims and principles • Leadership • Implementation of specific services • General measures in conventional services • Opioid availability • Education and training • Standards, legislation, definition of services • Financing model • Evaluation • Implementation plan with specific budget
Principles • Measures in all places • Sectorized • Insertion in preexisting services, including sociohealth • Gradual implementation • Public Planning • Public Financement
Aims • Coverage: for all in everywhere • Equity and accesibility • Quality: effectiveness, efficiency, satisfaction • Reference WHO
Initial key procesess • Clear ideas • Clear definition of clients and services • Leadership • Training • References/experiences • Institutional support pva20
Leadership Joint venture between • Ministry of health and financing agency • Professionals: well trained and highly committed • Organisations (Providers): public, profit, nonprofit • Academic (Universities)
General measures • Targets: Hospitals (oncology, internal medicine, geriatrics, emergencies), mid-term and long-term resources (nursing homes), primary care teams • Training: policies, sessions, formal training, local references • Change of organisation: teamwork, presence and support of the family • Liaison of resources
Specific Resources • Specific nurses • Support teams: in hospitals, community, both, systems • Units: type, dimension, placement • Nº beds: 80-100/milion • Placement: 10-20% acute, 40-60% sociohealth (mid-term), 10-20% residential, 10-20% hospices
Types of processes (always combined) • Implementation of new specific resources • Adaptation of conventional resources (general measures) • Reallocation of resources (reconversion) • “Catalythic”implementation or investment
Palliative care and geriatrics and cancer • Links with geriatrics in Sociohealth centers, nursing homes, and community • Links with cancer in hospitals, cancer centers, and the community • Both necessary
Common Resistances • “We are already doing so...” • “There is no need of specific services, we will do a lot of training....” • “Palliative care services will be seen as places to die....” • “This is good for England, USA, or Catalonia, but it will not work in our country....”
Expected results • Enormous improvement of the quality of care • Effectiveness • Efficiency: saving more than the structrural cost • Satisfaction: patients, families, professionals, and politicians
Palliative Care: added values • Care and organisation models useful in all the system • Model of care appliable to other conditions earlier • Emphasis in quality of life • Impact on the global efficiency • High patient’s and familie’s satisfaction • Ethical approach