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Research Access to Records Containing Protected Health Information A Review of 2014 Survey Results

Research Access to Records Containing Protected Health Information A Review of 2014 Survey Results. Emily R. Novak Gustainis, Head, Collections Services Center for the History of Medicine, Countway Library, Harvard Medical School Emily_Gustainis@hms.harvard.edu. About the Survey.

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Research Access to Records Containing Protected Health Information A Review of 2014 Survey Results

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  1. Research Access to Records Containing Protected Health InformationA Review of 2014 Survey Results Emily R. Novak Gustainis, Head, Collections Services Center for the History of Medicine, Countway Library, Harvard Medical School Emily_Gustainis@hms.harvard.edu

  2. About the Survey Maxwell Finland papers, H MS c153. Box 18, folder 5: Erythromycin and Ilosone, Food and Drug Administration: Ilotycin cases, 1952. Collection contains correspondence, pamphlets, articles, invoices, notes, charts, photographs, and graphs supporting drug studies from the 1940s through the 1970s.

  3. Oliver Cope papers, H MS c177: Box 6, folder: Q-Z. Contains Massachusetts General Hospital-related patient records on thyroid research, treatment, and surgical technique. Records include operation sheets, correspondence, reports, photographs

  4. Open four months (January – April 2014) • 63 respondents • 50 opted to self-identify as: • A professor/instructor of history, the history of medicine, or the history of science (44%) • A student (any field) (22%) • A physician or healthcare provider with an interest in the history of medicine or science (16%) • A professor/instructor of another Humanities sub-discipline or a different discipline (10%) • A researcher (no academic affiliation) (6%) • A librarian or archivist (2%)

  5. Awareness of Collection Restrictions 59.65% (n=57) learned about the presence of restricted records for the majority of the collections they used (or were interested in using) from a librarian or archivist 77.37% percent (n=61) respondents have used finding aids that included information about whether or not patient or other health-related records in the collection had access restrictions

  6. Variables

  7. What are the “Most Useful” formats for archivists to identify? Patient histories (91.67%) Case files Correspondence Patient questionnaires Patient summaries Consultation files Family medical histories Admission/registration record Diagnostic indices Photographs/medical imaging Informed consent records (43.75%) 12. Autopsy records (40.43%) Lab notebooks Prescription books/logs Research protocols Hospital policies 17. Graphs and charts 18. Surgical logbooks 19. Microscope slides/specimens 20. Billing information 21. Genetic testing records 22. Immunization records 23. Insurance records (12.5%)

  8. Thank you! (And how can we help?)

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