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SCCOR Data Management Update

SCCOR Data Management Update. John B. Nevy, Manager, Data Management. Main Database. Ingress to CT4 Database Migration QC’d No issues with found Database revisions ongoing Database being revised for the following forms: Birth History Family History Genetic Physical History Cardiology

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SCCOR Data Management Update

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  1. SCCOR Data Management Update John B. Nevy, Manager, Data Management

  2. Main Database • Ingress to CT4 Database Migration QC’d • No issues with found • Database revisions ongoing • Database being revised for the following forms: • Birth History • Family History • Genetic Physical History • Cardiology • Extra-cardiac Findings • Cytogenetics • Revision completion expected 3/22

  3. Main Database (cont’d) • Data Entry • Data Entry Guidelines being revised • Data Entry expected to re-start 3/26 • Revisions to previously entered data • Many of the revisions being programmed significantly impact previously entered data • Ex. Check one questions changing to check all • Fields impacted by this are being reviewed using listings from current structure • Data being updated into the new structure as appropriate

  4. Project 3 Database • Forms are being refined in parallel with database creation • Three (3) forms are considered complete and are being programmed: • Exercise Stress Test • Programming completion expected 3/30 • Electrophysiology • Programming completion expected 4/30 • Study Information • Programming completion TBD

  5. Project 3 Database (cont’d) • Other forms are being revised prior to starting programming: • Cardiac Catheterization (Pre & Post) • MRI • Post-operative Echocardiogram • Medical Assessment & Hospitalization • Perioperative (2 groups of forms) • Questionnaires (CHQ-CF87, PCQLI, etc.)

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