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Symptom Cases. Frank D. Ferris, MD Medical Director, Palliative Care Standards C ENTER F OR P ALLIATIVE S TUDIES San Diego Hospice and Palliative Care “Education and Research in the Art and Science of Palliative Care”
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Symptom Cases Frank D. Ferris, MDMedical Director, Palliative Care Standards CENTER FOR PALLIATIVE STUDIES San Diego Hospice and Palliative Care “Education and Research in the Art and Science of Palliative Care” Department of Family and Preventative Medicine, UCSD School of Medicine Department of Family and Community Medicine, andJoint Center for Bioethics, University of Toronto
Maria, 6 year old ♀ • Perinatal HIV • Orphaned • Cared for by mother’s family –Aunt, uncle, grandmother • PCP Rx’d x 2, good recovery • Admitted w. difficulty breathing, weakness • Dx = PCP again
Maria, 6 year old ♀ • IV Rx • Deterioration • Intubation / ventilation • 2 days • Improvement • Extubation
Maria, 6 year old ♀ • 3 days • Deterioration • Family chooses no further intubation • Desires best available comfort
Maria, 6 year old ♀ • Oxygen • Opioids • Human presence for comfort • Family • Child life specialist – responds to developmentally appropriate needs • Play at the end of life • Non-pharmacological
André, 29 year old ♂ • IV DU • CD4 = 50, RNA = 150K • Nausea, odynophagia, wasting, fatigue • 1.75 m (5’ 9”), 54.5 kg (120 lb.) • Dx: • Opportunistic infection • HIV Wasting
André, 29 yo ♂ • Rx: • Fluconazole • AZT / 3TC / Nevirapine
André, 29 yo ♂ • 2 weeks • Odynophagia • Weight 55.5 kg (122 lb) • Fatigue, nausea persist • Unable to take Rx
André, 29 yo ♂ • Rx • Prednisone • Megestrol acetate • Fluconazole • AZT / 3TC / Nevirapine • Haloperidol or chlorpromazine
André, 29 yo ♂ • 4 weeks • Weight 59 kg (130 lb) • Fatigue, nausea improved • CD4 = 80, RNA = < 400 • Adherence improved
Symptom Cases Summary