National Council on Patient Information and Education (NCPIE)

1. National Council on Patient Information and Education (NCPIE) Deborah Davidson Membership Director May 29, 2013

2. About NCPIE • Multi-stakeholder membership organization -- formed 1982-- healthcare professionals, consumer & patient groups, industry, government agencies. One of the original patient safety coalitions. • (30th Anniversary year) • Mission:Stimulate / improve communication of information on safe/appropriate medicine use to consumers & healthcare professionals • Convener, Catalyst, Collaborator and Clearinghouse of ideas & information to advance members’ shared mission. • “Medicine Education Team” – Patient is the key player October is the 28th national “ Talk About Prescriptions " Month" Initiated by the NCPIE coalition in 1986 as a mechanism for positioning our shared mission into the nation's public health agenda on an annual basis.

3. NCPIE Public-Facing Websites talkaboutrx.org bemedwise.org mustforseniors.org recoveryopensdoors.org

4. NCPIE Membership & Board of Directors USP – NCPIE Board Member Organization NCPIE Board of Directors - 27 members – 3 meetings/year Includes FDA and AHRQ - Non Voting Federal Liaisons N. Lee Rucker, M.S.P.H., AARP Public Policy Institute, Washington, DC is the current Chairperson NCPIE membership has four organizational categories: Consumer Business  Healthcare Professional Government Agencies and non-Government Standard Setting Organizations

5. NCPIE Membership Dues Tiers $ 165.00 For public sector, consumer/patient advocacy groups, universities, state or regional managed care companies $ 825.00For non-profit health professional organizations and trade organizations; and local/regional for- profit companies $ 8,250.00 For national and international for-profit companies The Membership Year is January 1 – December 31

6. Adherence Improvement Activities NCPIE published report in 1995: “Prescription Medicine Compliance: A Review of the Baseline of Knowledge.” • Included a series of recommendations to improve adherence for: • Physicians and Medical Schools • Pharmacists, Pharmacy-Providers and Educators • Pharmaceutical Manufacturers • All Health Professionals • Patients • Managed Care Organizations and Hospitals • Nurses and Educators

7. “Enhancing Prescription Medicine Adherence: A National Action Plan” NCPIE milestone report published August 2007 A renewed nationwide call to action for improving medication adherence (“America’s other drug problem”) through patient information and education, health professional intervention, expanded research, and supportive government policies. This National Plan of Action to Advance Medication Adherence included a suggested 10-step plan of action for diverse stakeholders’ consideration. Source: “Enhancing Prescription Medicine Adherence: A National Action Plan” (NCPIE, August 2007; www.talkaboutrx.org)

8. NCPIE Adherence Action Agenda (A3 Project) Multi-stakeholder (20 organizations) convened twice during the fall, 2012. Spotlight on: Patient – & provider-related adherence factors Chronic & co-morbid conditions Interplay of macro-factors Adherence research – in development, planned; pilots, demos, best practices Advocacy – what is not happening? how can we make it happen? Real-time A3 Website Portal • The A3 Project is intended to : • Synergize and maximize the impact and effectiveness of the many adherence improvement efforts underway in medical and pharmacy practice, policy arenas, provider and healthcare student education, public awareness and research areas; • Identify unmet needs and opportunities for progress; and • Stimulate efforts to address the gaps.

9. NCPIE Adherence Action Agenda (A3 Project) cont. • Next Steps: • NCPIE has begun working on an Adherence Action A3 project report; • Development of a stand-alone comprehensive real-time A3 • web-platform; • Framing an October “Talk About Prescriptions" Month A3Project • launch event for project stakeholders and NCPIE members in Washington DC.

10. NCPIE Risk Communications Project NCPIE has been awarded a collaborative agreement grant from the FDA to develop and implement a medication risk and drug safety communications research agenda and educational initiative. • NCPIE will conduct a national survey of consumers’ and healthcare providers’ knowledge, attitudes and practices regarding medication risk communications. • NCPIE will extrapolate key finding from the survey research to develop and conduct and assess a national risk communications campaign through traditional and social media channels addressing medication risk reduction to promote safe and appropriate medicine use. • The research initiative is being conducted with input from the Johns Hopkins Center for Drug Safety and Effectiveness, (CDSE), a new center jointly supported by the Bloomberg School of Public Health and Johns Hopkins Medicine.

11. Risk Communications Project cont. Ipsos, a national survey company will soon conduct consumer and healthcare professional surveys reaching out to: 2,000 consumers of age 18 years and older; and 800 healthcare providers, representing pharmacists in community-based retail settings, and prescribers, including primary care physicians, nurse practitioners, and physician assistants. The respective surveys will probe issues related to medication risk and safety. NCPIE will convene a multi-stakeholder project advisory to provide expert guidance and input on the formulation, implementation planning and assessment of optimal communications strategies, pathways/channels and educational programs for communicating essential medication safety and risk information to key target audiences – including consumers and healthcare professionals.

12. Addressing Prescription Drug Abuse:Resources available from NCPIE • Not Worth the Risk- Even If It’s Legal- Multi-media materials, including TV & radio spots, print articles in English and Spanish; brochures for parents & teens; SAMSHA collaboration • Maximizing Your Role as a Teen Influencer: What You Can Do to Help Prevent Teen Prescription Drug Abuse(turn-key outreach / educational workshop, web-based; SAMHSA collaboration) • Taking Action to Prevent & Address Prescription Drug Abuse: A Resource Kit or College Campuses(web-based; SAMHSA collaboration)

13. Addressing Prescription Drug Abuse:Resources available from NCPIE cont. • Recovery Opens Doors: An Online Resource for Young People in Recovery(web-based; SAMHSA collaboration) – August 2012 • Pass It Forward Video Challenge – Now Under Way! • Offering young adults age 18 -25 a chance for national recognition of their 2- minute Rx abuse prevention video entries. • Deadline for entries is June 7, 2013. • Details – visit www.passitforward.info

14. Acetaminophen Safe Use Program for Teen Influencers Acetaminophen Safe Use College Resource Guide Acetaminophen Safe Use Program for Seniors

15. NCPIE External Collaborations • National Recovery Month Planning Partners • Prescriptions for a Healthy America: A Partnership for Advancing Medication Adherence by the Council for Affordable Health Coverage (CAHC) • Script Your FutureNational Medication Adherence Awareness Campaign • The Acetaminophen Awareness Coalition - Know Your Dose Campaign • The Alliance for the Rational Use of NSAIDS  • The Medicine Abuse Project by the Partnership at DrugFree.org • The National Coordinating Council on Medication Error Reporting and Prevention, • (NCC MERP) • The CDC PROTECT & PROTECT-Rx Initiatives: Advancing Children’s Medication Safety • United States Access Board: Working Group on Accessible Prescription Drug Labels

16. Contact Information Deborah Davidson Membership Director National Council on Patient Information and Education (NCPIE) 200-A Monroe Street, Suite 212 Rockville, MD 20850 (301) 340-3940 - phone ddavidson@ncpie.info – email www.talkaboutrx.org www.mustforseniors.org www.bemedwise.org www.recoveryopensdoors.org