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ECPC SUSTAINING PARTNER MEETING 2007

Romanian Health Forum Sustainable and Patient-Centered Healthcare Policies Simona Ene Vice-president. NOTHING ABOUT US WITHOUT US. ECPC SPEAKS WITH A SINGLE VOICE FOR ALL CANCER PATIENTS. ECPC SUSTAINING PARTNER MEETING 2007. Summary: ECPC: "Nothing about us without us".

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ECPC SUSTAINING PARTNER MEETING 2007

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  1. (change footnote using Menu "View > Change headline/footnote") Romanian Health ForumSustainable and Patient-Centered Healthcare PoliciesSimona EneVice-president NOTHING ABOUT US WITHOUT US. ECPC SPEAKS WITH A SINGLE VOICE FOR ALL CANCER PATIENTS ECPC SUSTAINING PARTNER MEETING 2007

  2. Summary: ECPC: "Nothing about us without us" • Representing >300 cancer patient groups in 41 countries • All cancers – common and rare • Promoting the fundamental rights of patients • Run and governed by patients • Increasing cancer patients' influenceover European health and research policy • Promoting timely access to appropriate prevention, screening, early diagnosis, treatment and care for all cancer patients • Reducing disparity and inequity across the EU • Encouraging the advance of cancer research & innovation • High visibility with EU Commission, EMEA, EU Parliament

  3. Some of ECPC's achievements • Cancer patients given a key voice in a number of EU initiatives: EU Commission; Parliament; EMEA • 2006“Warsaw Declaration”co-signed by more than 140 cancer advocates, • 2008: MEPs Against Cancer (MAC):more than 70 members in the EU Parliament showing their support for cancer issues • 2008: Putting back cancer on EU Health Agenda • 2009:Cancer Partnership, ECPC EU Election Campaign, Conference Step by step guide • 3 very successful "Masterclasses on patient advocacy“

  4. ECPC’s involvement in major EU cancer policy activities Influence on EU policy impacting on prevention, detection and treatment of Cancer • Council Conclusion on Cancer • European Parliament Cancer Resolution • Slovenian Presidency / Slovenian Cancer Book • EMEA Patient & Consumer Working Party (PCWP) Participation in other EU initiatives • "European Code against Cancer" Steering Group • Rare Disease Task Force • FP7: Development of European Guidelines for Quality Assurance of Colorectoral Cancer Screening • FP7: RARECARE - Surveillance of rare cancers in Europe

  5. European PartnershipAction Against Cancer • ECPC is involved in the Partnership to ensure that the patient perspective is at the centre • Spoke at official launch: 29 Sept 2009 in Brussels • ECPC collected cancer patient stories from all 27 EU member states to give cancer a face • ECPC now involved in a number of work packages, representing the patients' voice

  6. "4th ECPC Masterclass in Cancer Patient Advocacy": 24-25 October 2009, Germany • Entitled "ECPC Members in Action 2009" • Speakers from the EU Commission, EU Parliament, professionals, patient group representatives, • European Partnership for Action Against Cancer • Understanding how EU Policy can help our members in their country • Supporting and empowering members in their advocacy work • Health Economics and Drug Pricing • ECPC Marketplace: Groups sharing best practice • Workshops: Code of Practice, EU Policy, Implementing the EU Code Against Cancer • ~110 participants

  7. ECPC Board & Staff Board (2007 – 2010) • Tom Hudson (President), Europa Uomo, Ireland • Sandy Craine (Secretary), CMLSupport.org, UK • Tom van der Wal (Treasurer), SDK, The Netherlands • Heide Preuss (Vice President), Mamazone, Germany • Simona Ene (Vice President), Association of Cancer Patients, Romania • Evgeniya Adarska APOZ &Friends, Bulgaria • Lynn Faulds Wood, LBCC, UK • Luminita Andreescu FAVO & Anvolt, Italy • Staff • Jan Geißler (ECPC Director) • Denis Horgan (ECPC Political Affairs Manager) • Michi Geißler (ECPC Office)

  8. Patient –centered healthcare policy • Put healthcare on national policy agenda priorities • Implement EU Healthcare Policy • Mentality change • Behavior change

  9. All Actors should be aware Health care : • is not a grace from the politicians but a political responsibility and a main duty • is not the mercy of a state but the delivery of people’s rights, a fundamental rights of every individual • is one of the most important criteria making a country livable • ispart of the general interest services • represents a main component of social protection • contributes to social cohesion and justice, sustainable development

  10. NGO’s contribution • Non governmental, NOT anti-governmental • Equal partners in planning healthcare policy • Contribute to health system strengthening

  11. (change footnote using Menu "View > Change headline/footnote") Thank you very much! Nothing about us – without us! Please get in touch!info@ecpc-online.org CHAMPIONING THE INTERESTS OF EUROPEAN CANCER PATIENTS

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