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“ Working with the web-database and Biobanking ” MEDICEL meeting 2011 Bologna. April 5 2011

“ Working with the web-database and Biobanking ” MEDICEL meeting 2011 Bologna. April 5 2011 . Jose Ramon Bilbao. The MediCel database… a newborn project http//medicel.sedyne.org. The MediCel database… a newborn project http//medicel.sedyne.org. it needs to grow .

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“ Working with the web-database and Biobanking ” MEDICEL meeting 2011 Bologna. April 5 2011

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  1. “Working with the web-database and Biobanking” MEDICEL meeting 2011 Bologna. April 5 2011 Jose Ramon Bilbao

  2. The MediCel database… a newborn project http//medicel.sedyne.org

  3. The MediCel database… a newborn project http//medicel.sedyne.org it needs to grow

  4. The MediCel database… a newborn project http//medicel.sedyne.org request for access…

  5. The MediCel database… a newborn project http//medicel.sedyne.org type your country

  6. The MediCel database… a newborn project http//medicel.sedyne.org type your name

  7. The MediCel database… a newborn project http//medicel.sedyne.org type your name

  8. The MediCel database… a newborn project http//medicel.sedyne.org type your name you can only do two things now…

  9. The MediCel database… a newborn project http//medicel.sedyne.org type your name

  10. The MediCel database… a newborn project http//medicel.sedyne.org

  11. The MediCel database… a newborn project http//medicel.sedyne.org Thisisananonymousdatabase Samples are coded: country_XX

  12. The MediCel database… a newborn project http//medicel.sedyne.org Thisisananonymousdatabase Samples are coded: country_XX Youshouldhaveyourcodesafewithyou country_XX=patient ID

  13. The MediCel database… a newborn project http//medicel.sedyne.org Thisisananonymousdatabase Samples are coded: country_XX Youshouldhaveyourcodesafewithyou country_XX=patient ID This will be important for follow-up…

  14. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory!

  15. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? isage at Dxenough?

  16. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? isage at Dxenough? …will check

  17. The MediCel database… a newborn project http//medicel.sedyne.org

  18. The MediCel database… a newborn project http//medicel.sedyne.org “Lab” results …but are they necessary? isage at Dxenough? …will check

  19. The MediCel database… a newborn project http//medicel.sedyne.org …but are they necessary? Shouldadd rapid test (+/-)? isage at Dxenough? …will check

  20. The MediCel database… a newborn project http//medicel.sedyne.org Biological material …but are they necessary? isage at Dxenough? …will check

  21. The MediCel database… a newborn project http//medicel.sedyne.org Isthisrealistic? • Fixed? • Frozen? • Slide? • Paraffin block? Allfields are (*) compulsory! …but are they necessary? isage at Dxenough? …will check

  22. The MediCel database… a newborn project http//medicel.sedyne.org Or should we share “image files” with consultant pathologists

  23. The MediCel database… a newborn project http//medicel.sedyne.org Or should we share “image files” with consultant pathologists we are implementinganimagerepositorytouploadimagesfortraining and forconsultation

  24. The MediCel database… a newborn project http//medicel.sedyne.org Or should we share “image files” with consultant pathologists we are implementinganimagerepositorytouploadimagesfortraining and forconsultation weneedthem!!

  25. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? Are we going to “store/share”? isage at Dxenough? …will check

  26. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? Are we going to “store/share”? isage at Dxenough? …will check CELI-BANK …what for?

  27. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! RESEARCH! …but are they necessary? Are we going to “store/share”? isage at Dxenough? …will check CELI-BANK …what for?

  28. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! RESEARCH!and… …but are they necessary? Are we going to “store/share”? isage at Dxenough? …will check CELI-BANK …what for?

  29. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? Confirm rapidtests unclearresults Reference Laboratory

  30. The MediCel database… a newborn project http//medicel.sedyne.org Allfields are (*) compulsory! …but are they necessary? isage at Dxenough? …will check Geneticstudies?

  31. The MediCel database… a newborn project http//medicel.sedyne.org SNP-based DQ2.5 DQ2.2 DQ8 Provideaffordable HLA testing Allfields are (*) compulsory! …but are they necessary? isage at Dxenough? …will check Provide HLA testing othergeneticstudies? SNP-based DQ2.5 DQ2.2 DQ8

  32. The MediCel database… a newborn project http//medicel.sedyne.org SNP-based DQ2.5 DQ2.2 DQ8 Provideaffordable HLA testing othergeneticstudies? Allfields are (*) compulsory! …but are they necessary? DNAbank isage at Dxenough? …will check Provide HLA testing othergeneticstudies? SNP-based DQ2.5 DQ2.2 DQ8

  33. The MediCel database… a newborn project http//medicel.sedyne.org Or should we share “image files” with consultant pathologists Couldthesetwo ideas be thebasisfor a collaborativeproject? Provideaffordable HLA testing Allfields are (*) compulsory! …but are they necessary? isage at Dxenough? …will check Provide HLA testing othergeneticstudies? SNP-based DQ2.5 DQ2.2 DQ8

  34. The MediCel database… a newborn project http//medicel.sedyne.org …but are they necessary? isage at Dxenough? …will check Provide HLA testing othergeneticstudies? SNP-based DQ2.5 DQ2.2 DQ8 symptoms/signs

  35. The MediCel database… a newborn project http//medicel.sedyne.org …but are they necessary? isage at Dxenough? …will check Provide HLA testing othergeneticstudies? SNP-based DQ2.5 DQ2.2 DQ8 symptoms/signs are wehappy?

  36. The MediCel database… a newborn project http//medicel.sedyne.org symptoms/signs are wehappy?

  37. The MediCel database… a newborn project http//medicel.sedyne.org symptoms/signs are wehappy?

  38. The MediCel database… a newborn project http//medicel.sedyne.org symptoms/signs are wehappy? …let us know

  39. The MediCel database… a newborn project http//medicel.sedyne.org

  40. The MediCel database… a newborn project http//medicel.sedyne.org

  41. The MediCel database… a newborn project http//medicel.sedyne.org 544 patients!

  42. The MediCel database… a newborn project http//medicel.sedyne.org 544 patients! 270 w/out HLA typing!

  43. The MediCel database… a newborn project http//medicel.sedyne.org 544 patients! …should we? 270 w/out HLA typing!

  44. The MediCel database… what next? http//medicel.sedyne.org type your name …we want to do more than just two things

  45. The MediCel database… what next? http//medicel.sedyne.org type your name …we want to do more than just two things

  46. The MediCel database… what next? http//medicel.sedyne.org 1.- Diagnosis of CD - confirmed? - doubtful? type your name

  47. The MediCel database… what next? http//medicel.sedyne.org 1.- Diagnosis of CD - confirmed? - doubtful? type your name seek help from the “experts” …through the database

  48. The MediCel database… what next? http//medicel.sedyne.org 1.- Diagnosis of CD 2.- Query/filter/modifypatient data type your name

  49. The MediCel database… what next? http//medicel.sedyne.org 1.- Diagnosis of CD 2.- Query/filter/modifypatient data 3.- Insertfollow-up information - associateddiseases - re-testing of TGA - re-byopsying type your name

  50. The MediCel database… what next? http//medicel.sedyne.org 1.- Diagnosis of CD 2.- Query/filter/modifypatient data 3.- Insertfollow-up information 4.- Enableuploading/viewing of images linkedtopatient data type your name

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