The Indianapolis Discovery Network in Dementia: The IDND Project Aug 23, 2006 Fourth IDND Meeting

1. IDND The Indianapolis Discovery Network in Dementia:The IDND ProjectAug 23, 2006Fourth IDND Meeting Malaz Boustani, MD, MPH Stephanie Munger, BS IUCAR, Regenstrief Institute, Inc.

2. Sponsorship IDND • Pfizer: • Facilitates creating environment for brainstorming by the IDND members. • No honorarium for any IDND members including Dr. Boustani • No restriction on the content of IDND

3. The IDND Minimum Specifications: The Rules IDND • No rules • Pro-Active listening • Pro-Active involvement • Regular meeting bimonthly or monthly • Sharing the minutes with all IDND members • Group feedback for any new idea • Self-organization

4. The IDND Frame-Work Changing Clinical & Research Environment Stress Other Local CASs Connection The IDND System Independent Scholar A Independent Scholar E Independent Scholar B Connection Connection Feedback Common goal Of IDND Independent Scholar D Independent Schoalr C Connection

5. The Complex Adaptive Systemof IDND • A number of independent diversified Scholars • Common and prioritized goal/goals (the IDND identity) • Local nonlinear dynamic interaction among these scholars • A supportive Matrix for IDND member interactions • Aligns IDND members’ interactions with the IDND goal via • Rich matrix • multiple dynamic positive feedback loops • No centralized control • Self-organization (distributed control) IDND

6. Evaluating the Impact of IDND • Attendance rates of the IDND meeting • # of projects generated by the IDND members: • Clinical • Research • Advocacy activities • # of publication generated by the IDND members • # of educational activities generated by the IDND members • Involvement of IDND members with state health policy and community outreach activities related to AD and dementia? IDND

7. Emergent Ideas From Last Meeting • 80% of IDND members attended the first meeting of 30 total members 53% attended the second meeting of 34 total members37% attended the third meeting, now with 38 members in total! • ?? Attended the fourth meeting, now with 42 members. • The IDND library resource for clinical and educational support (Website!) • IU Roybal will sponsor the website via the CADRE proposal • Will be connected to ADEAR • Standardizing dementia screening and diagnosis work-up tool • Creating the software • Proposal to AA or Pfizer (will discuss today) • Create state-wide registry for research using the current Indiana-AA infrastructure • The CADRE project got funded • Creating directory of IDND members • Via the Website • Members can develop their own ideas and workshop based on IDND interest • Spreading the word about IDND • AGS meeting • NIA • Pfizer • AA newsletter

8. Accomplishments Since Last Meeting • Great presence of Indiana researchers at ICAD. • PREVENT • E-CHAMP • Indianapolis-Ibadan Study • Indianapolis Health and Aging study was funded for a fourth round • Indiana ADC was renewed • CIND R01 was funded • PRISM-PC R01 was submitted • PREVENT-II in the UK was submitted. • Numerous papers are in preparation related to dementia in primary care. • Three Symposium were submitted to AGS and one to AAGP. • The progress of the CADRE project. • Our Members directory is slowly advancing!

9. Announcement • E-CHAMP enrolled 45 pts over the last 45 days. • Amy Levy from NY story

10. Potential Discussion Topics For Today • The Consultancy challenge • Maintaining our IDND • Clinical case from Methodist ACE • The dementia software in primary care if possible.