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Hemophilia and School:  Developing an Individualized Healthcare Plan (IHP)

Hemophilia and School:  Developing an Individualized Healthcare Plan (IHP). Ideal Setting. Collaboration School Parent Medical Team. School Issues. Frequent absences Hard to catch up Decreased peer support Activity restrictions No contact sports

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Hemophilia and School:  Developing an Individualized Healthcare Plan (IHP)

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  1. Hemophilia and School:  Developing an Individualized Healthcare Plan(IHP)

  2. Ideal Setting • Collaboration • School • Parent • Medical Team

  3. School Issues • Frequent absences • Hard to catch up • Decreased peer support • Activity restrictions • No contact sports • Immobilization during bleeding episodes • Pain • Chronic/acute • Medication side effects • Infectious diseases

  4. Medical Management at School • Acute management • Factor replacement • Joint support • R.I.C.E. • Pain medications • Tylenol • Narcotics • NASIDS

  5. Medical Management at School • Subacute management • Exercise • Education • Counseling

  6. Individualized Healthcare Plan • History • Type/severity • Bleeding patterns • Hemophilia Treatment Center (HTC) • Medical Plan • Treatment Plan • Student’s participation • Past attendance patterns • Participation • Activities • PE • Other sports

  7. Individualized Healthcare Plan • Assessment • Knowledge/perception about hemophilia • School • Student/family • Students ability to do self care • Motivation for self care • Barriers • Health Status • Environmental Assessment

  8. Individualized Healthcare Plan • Nursing Diagnosis • Potential for injury related to factor deficiency • Potential for alteration in comfort • Potential for alteration in mobility • Knowledge deficit related to disease/management • Potential for noncompliance • Potential for alteration in student role

  9. Individualized Healthcare Plan • Goals • Prevent injuries/safety measures • Not always able to prevent bleeds • Develop emergency plan • Comply with medical treatment • Prevention • Treatment • Good decision making • Good attendance • Maximum participation

  10. Individualized Healthcare Plan • Nursing Interventions • Environmental assessment to prevent injury • Safety measures • Emergency plans for bleeding episodes at school • Adequate knowledge of medications and side effects • Appropriate authorizations • Obtain needed equipment/supplies

  11. Individualized Healthcare Plan • Nursing interventions • Keep accurate records • Discuss bleeding prevention with staff • Inservices as needed • Provide/coordinate health education opportunities • Choose and implement motivators to compliance • Remove barriers • Monitor attendance patterns/academic performance

  12. Individualized Healthcare Plan • Outcomes • The student will: • Describe disease and treatment • Identify healthy lifestyle decisions • Take appropriate safety measures/protective equipment • Maintain good attendance • Be a normal kid!

  13. Individualized Healthcare Plan • History • Assessment • Nursing Diagnosis • Goals • Nursing intervention • Outcome

  14. The School Nurse’s Source Book of Individualized Healthcare Plans M.J. Gerber et al. Vol 1, Sunrise River Press

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